Connections Reduce Rheumatic Heart Disease‐Related Mortality in Western Australia: A Mixed Methods Study.
Introduction: Preventable rheumatic heart disease (RHD) deaths continue to occur in Australia, with Aboriginal people disproportionately affected. Despite research into structural drivers and the lived experience of people with RHD, and national guidelines focusing on RHD prevention and treatment, r...
| Published in: | Australian Journal of Rural Health Vol. 33; no. 2; pp. 1 - 12 |
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| Main Authors: | , , , , , , , |
| Format: | research tables/charts Journal Article |
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Wiley-Blackwell
Apr2025
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=184768272&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 184768272 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10385282 FQO jtl: Australian Journal of Rural Health issn: 10385282 maglogo: Y pubinfo: dt: Apr2025 vid: 33 iid: 2 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 184768272 184768272 184768272 10.1111/ajr.70022 184768272 ppf: 1 ppct: 11 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Connections Reduce Rheumatic Heart Disease‐Related Mortality in Western Australia: A Mixed Methods Study. aug: au: DeCourcy, Virginia Hunt, Daniel Stacey, Ingrid Haynes, Emma Paterson, Beverley Huppatz, Clare Gilles, Marisa Katzenellenbogen, Judith affil: WA Country Health Service, Perth, Australia sug: subj: Rheumatic Heart Disease Mortality Mortality Trends Mortality Prevention and Control Human Descriptive Statistics Data Analysis Software Qualitative Studies Semi-Structured Interview Australia Aboriginal Australians Descriptive Research Male Female Infant, Newborn Infant Child, Preschool Child Adolescence Adult Middle Age Infant, Newborn: birth-1 month Infant: 1-23 months Child, Preschool: 2-5 years Child: 6-12 years Adolescent: 13-18 years Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Introduction: Preventable rheumatic heart disease (RHD) deaths continue to occur in Australia, with Aboriginal people disproportionately affected. Despite research into structural drivers and the lived experience of people with RHD, and national guidelines focusing on RHD prevention and treatment, recent coronial inquests have highlighted that systemic failures are ongoing. Few studies describe RHD service delivery and/or mortality within the Western Australian (WA) context. Objective: This study aimed to integrate quantitative information regarding RHD‐related deaths in WA between 2012 and 2021 with qualitative interview data to identify system‐level opportunities for the prevention of RHD‐related mortality in the WA health care setting. Design: Using quantitative data from the WA RHD register, a descriptive analysis of the clinical and demographic characteristics of RHD patients aged < 65 years was conducted, stratified by vital status. Thematic qualitative analysis of RHD stakeholder interviews was conducted in parallel, capturing systemic factors perceived to prevent or contribute to RHD‐related mortality in WA. Findings: Limited health service contacts were documented for the 60 registered‐recorded deaths among people with RHD. Interviewees emphasised that access to appropriate care was vital to prevent mortality. Passionate healthcare providers connect patients with care by fostering trusting relationships, but logistical, socio‐cultural and care quality barriers continue to hamper connections. Conclusion: Systemic change is needed in WA to support motivated providers and ensure that efforts to reduce RHD mortality do not rely on individual initiatives. This study contributes evidence for the need to improve RHD program design by prioritising patient‐provider connections, empowering, and resourcing providers to effectively engage with RHD patients. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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