Building independence in self-care and household tasks: a qualitative study with adolescents with cerebral palsy and their caregivers.
Purpose: Adolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers. Materials and methods: We...
| Published in: | Disability & Rehabilitation Vol. 47; no. 10; pp. 2647 - 2655 |
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| Main Authors: | , , , , |
| Format: | pictorial research tables/charts Journal Article |
| Published: |
Taylor & Francis Ltd
May2025
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=185154120&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 185154120 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09638288 B73 jtl: Disability & Rehabilitation issn: 09638288 maglogo: Y pubinfo: dt: May2025 vid: 47 iid: 10 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 185154120 179570711 185154120 185154120 10.1080/09638288.2024.2401142 185154120 ppf: 2647 ppct: 8 formats: tig: atl: Building independence in self-care and household tasks: a qualitative study with adolescents with cerebral palsy and their caregivers. aug: au: Iscorsoni, Fernanda Bueno, Kátia M. P. Feitosa, Aline M. Mancini, Marisa C. Brandão, Marina B. affil: Gradutate Program in Rehabilitation Sciences, Universidade Federal de Minas Gerais, Belo Horizonte, Brazil sug: subj: Self Care Task Performance and Analysis Cerebral Palsy In Adolescence Caregivers Psychosocial Factors Activities of Daily Living Functional Status Human Qualitative Studies Phenomenological Research Brazil Semi-Structured Interview Content Analysis Thematic Analysis Adaptation, Psychological Collaboration Funding Source Adolescence Descriptive Statistics Adolescent: 13-18 years ab: Purpose: Adolescents with cerebral palsy (CP) may experience limitations in self-care and household tasks. The aim of the study was to understand the process of building independence in self-care and household tasks from the perspective of adolescents and their caregivers. Materials and methods: We conducted a qualitative study with a phenomenological approach with 10 adolescents (15–17 years old) and 11 caregivers from a transition service in Brazil. Semistructured, remote interviews were conducted with each participant. The interviews were recorded for transcription and content analysis. Results: Two thematic categories emerged: (1) "Thinking about independence" and (2) "Possible ways to foster independence." The first category was divided into three subcategories: "Expectations and the desire to be independent," "Obstacles to independence," "Concerns about the future." The second category was divided into four subcategories: "People and places," "Opportunities for practice," "Personal attitude" and "Adaptations that facilitate." Conclusion: Adolescents' independence in several everyday activities involves physical, socioemotional and environmental aspects. Enabling opportunities for practice, an adapted environment, support from rehabilitation services and developing collaborative relationships with caregivers are elements that may favor the independence of adolescents with CP. IMPLICATIONS FOR REHABILITATION: The relationship between adolescents and their caregivers is important in building independence. Interventions centered on educational practices for caregivers of adolescents with cerebral palsy should be encouraged. Environmental facilitators include support from families, friends and therapists. Collaborations among therapists, caregivers and adolescents may promote autonomy. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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