Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care.
Background: To achieve benefits of person-centred outcome measures within routine children's palliative care, implementation plans and the intended pathways to impact must be established. Aim: To develop a Theory of Change and Implementation Plan for sustained implementation of a novel person-centre...
| Publicado en: | Palliative Medicine Vol. 39; no. 6; pp. 709 - 724 |
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| Autores principales: | , , , , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Jun2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=185388186&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 185388186 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02692163 31I jtl: Palliative Medicine issn: 02692163 maglogo: Y pubinfo: dt: Jun2025 vid: 39 iid: 6 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 185388186 184534619 185388186 185388186 10.1177/02692163251331165 185388186 ppf: 709 ppct: 15 formats: tig: atl: Developing a Theory of Change and Implementation Plan to implement a novel child- and family-centred outcome measure in paediatric palliative care. aug: au: Scott, Hannah May Gaczkowska, Inez Braybrook, Debbie Harðardóttir, Daney Fraser, Lorna K Ellis-Smith, Clare Harding, Richard affil: Florence Nightingale Faculty of Nursing Midwifery and Palliative Care, Cicely Saunders Institute, King's College London, London, UK sug: subj: Palliative Care Standards Pediatrics Standards Patient Centered Care Implementation Science Outcome Assessment Hospitals, Pediatric Human Male Female Adult Middle Age Funding Source Child Seminars and Workshops Social Media Communication Quality of Life Quality Improvement Thematic Analysis Parents Psychosocial Factors United Kingdom Adult: 19-44 years Middle Aged: 45-64 years Child: 6-12 years Male Female ab: Background: To achieve benefits of person-centred outcome measures within routine children's palliative care, implementation plans and the intended pathways to impact must be established. Aim: To develop a Theory of Change and Implementation Plan for sustained implementation of a novel person-centred outcome measure into routine hospital care for children with life-limiting conditions and to identify potential causal mechanisms. Design: Participatory workshops and a directed content analysis developed a Theory of Change. Framework analysis of workshop qualitative workshop data, supported by Normalisation Process Theory Informed an implementation plan. Setting/participants: Health and social care professionals and parent/carers were recruited to six online workshops through social media and networks. Results: Eight health and social care professionals and eight parents participated. The Theory of Change identified overall impact of improved care and quality of life, through improved identification of symptoms and concerns and improved communication between healthcare teams. However, for this to happen, education and training on the outcome measure, anticipated benefits, how to implement and use it are required. Logistical, resource and staffing barriers must be addressed, alongside the development of a detailed implementation plan. Analysis of workshop transcripts identified seven themes relating to the domains of Normalisation Process Theory: education and information needs, the importance of a tailored approach, stakeholder engagement and the role of champions, healthcare records and IT system support requirements, improved health outcomes, improved experience of care and evidence for service provision, development, evaluation and expansion Conclusion: Future work should pilot test the Theory of Change and Implementation Plan. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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