Rare and Undiagnosed Disease: A Learning Program for Nurses and Midwives.
This paper presents a newly developed online learning program currently designed to meet the learning objectives of nurses and midwives and rare and undiagnosed disease. Background/Objectives: This paper will also introduce the Global Nursing Network for Rare Disease and its role and commitment in s...
| Publicado en: | Nursing Reports Vol. 15; no. 5; pp. 136 - 143 |
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| Autores principales: | , , |
| Formato: | tables/charts Journal Article |
| Publicado: |
MDPI
May2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=185476469&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 185476469 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: May2025 vid: 15 iid: 5 pid: 97109 pub: MDPI artinfo: ui: 185476469 185476469 185476469 10.3390/nursrep15050136 185476469 ppf: 136 ppct: 7 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Rare and Undiagnosed Disease: A Learning Program for Nurses and Midwives. aug: au: Baker, Sue Stevens, Kaila Pugh, Dale affil: Perth Children's Hospital Rare Care Centre, Nedlands 6009, Australia sug: subj: Rare Diseases Education Undiagnosed Diseases Education Nurses Education Midwives Education Learning Methods Online Education Program Development Curriculum Development Course Evaluation Professional Development Networking, Professional Nursing Organizations Patient Care Health Care Delivery Professional Knowledge Skill Acquisition ab: This paper presents a newly developed online learning program currently designed to meet the learning objectives of nurses and midwives and rare and undiagnosed disease. Background/Objectives: This paper will also introduce the Global Nursing Network for Rare Disease and its role and commitment in supporting nurses and midwives in the identification of rare disease and the delivery of appropriate care and interventions to care for people living with rare and undiagnosed disease. Globally, nurses and midwives are often the first healthcare provider a patient will engage with. Combined with the estimated 300 million living with a rare disease across the globe, nurses and midwives are well positioned when assessing patients to have adequate awareness and suspicion to consider the presence and impact of rare disease. To enable this awareness and knowledge to ensure timely assessment and referrals, specific knowledge is required. There is a current paucity of learning programs about rare and undiagnosed disease specifically for nurses and midwives. Methods: The proposed learning program comprises seven modules designed to address the learning needs of novice to expert nurses and midwives from across the globe. Increased knowledge will in turn increase awareness and confidence to inform decision-making for patients presenting with undiagnosed signs and symptoms by 'thinking rare'. Results: The proposed learning program comprises seven modules and a number of individual lessons which will be suitable for the needs of novice to expert nurses and midwives from across the globe. pubtype: Academic Journal doctype: tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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