Lower-Limb Amputees and Family Caregivers: Challenges, Needs, and Strategies for Empowerment—A Qualitative Study.
Background/Objectives: Lower-limb amputation profoundly affects individuals and their family caregivers, particularly during home transition after hospital discharge. Understanding the needs, challenges, and emotions during this period is essential for designing effective family centered empowerment...
| Publicado en: | Nursing Reports Vol. 15; no. 5; pp. 166 - 182 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
MDPI
May2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=185476499&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 185476499 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 2039439X EGNT jtl: Nursing Reports issn: 2039439X maglogo: N pubinfo: dt: May2025 vid: 15 iid: 5 pid: 97109 pub: MDPI artinfo: ui: 185476499 185476499 185476499 10.3390/nursrep15050166 185476499 ppf: 166 ppct: 16 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Lower-Limb Amputees and Family Caregivers: Challenges, Needs, and Strategies for Empowerment—A Qualitative Study. aug: au: Rodrigues, Diana Carvalho, Luís Pinto, Cristina affil: RISE-Health, Faculty of Medicine, University of Porto, Alameda Prof. Hernâni Monteiro, 4200-319 Porto, Portugal sug: subj: Lower Extremity Surgery Amputees Psychosocial Factors Patient Attitudes Evaluation Caregiver Attitudes Evaluation Needs Assessment Empowerment Hardiness Adaptation, Psychological Amputation Human Descriptive Research Exploratory Research Semi-Structured Interview After Care Referral and Consultation Qualitative Studies Content Analysis Data Analysis Software Patient Autonomy Physical Mobility Architectural Accessibility Emotions Patient Discharge Amputees Education Caregivers Education Community Support Psychological Distress Social Isolation Life Style Changes Assistive Technology Devices Continuity of Patient Care Multidisciplinary Care Team Quality of Life Convenience Sample Aged Aged, 80 and Over Middle Age Support, Psychosocial Skill Acquisition Aged: 65+ years Aged, 80 & over Middle Aged: 45-64 years ab: Background/Objectives: Lower-limb amputation profoundly affects individuals and their family caregivers, particularly during home transition after hospital discharge. Understanding the needs, challenges, and emotions during this period is essential for designing effective family centered empowerment interventions. This study aimed to explore the lived experiences of amputees and their caregivers, identify their needs and challenges, and identify strategies to foster empowerment, resilience, and adaptation after amputation. Methods: This qualitative, descriptive-exploratory study involved semi-structured interviews with 37 dyads, each comprising an amputee who has undergone major dysvascular lower-limb amputation and their primary caregiver, who provided home care. The participants attended follow-up consultations post-amputation. Data were collected over a 13-month period and analyzed using qualitative content analysis based on Bardin's methodology, with support from ATLAS.ti 23.3.4 software for coding and data organization. Results: Four categories emerged: (i) difficulties faced, including loss of autonomy, mobility challenges, architectural barriers, and emotional strain; (ii) home discharge, emphasizing functional training for amputees and caregivers and the need for community support; (iii) impact of amputation, highlighting acceptance difficulties, psychological distress, social isolation, and lifestyle changes; and (iv) empowerment strategies, focusing on psychological support, skills training, assistive devices, and coordinated care. Tailored interventions such as peer support, home adaptations, and multidisciplinary care are essential for resilience, independence, and improved quality of life. Conclusions: Family centered empowerment strategies are vital for improving the outcomes of amputees and caregivers. Interventions that prioritize caregiver education, psychological support, and enhanced accessibility promote resilience, autonomy, and quality of life. These findings highlight the need for integrated hospital-to-community programs. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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