Parental Caregiving Experiences in Epidermolysis Bullosa: A Phenomenological Study.
Background: Epidermolysis bullosa (EB) is a rare, inherited disease characterized by mucocutaneous fragility. It requires continuous family support and caregiving. However, insights into the complex realities of daily caregiving roles for parents remain limited. This study aimed to explore the lived...
| Publicado en: | International Journal of Community Based Nursing & Midwifery Vol. 13; no. 2; pp. 149 - 161 |
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| Autores principales: | , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Shiraz University of Medical Sciences
Apr2025
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| Acceso en línea: | Ver este registro en EBSCOhost |