Usage Patterns, Trust Generated, and Influence of Information in Internet and Social Media on Decision-Making by Patients Diagnosed With Rheumatic Diseases in Latin America.
Introduction: Internet and social media are widely available tools for several purposes, including search of health information. This study aims to describe the usage patterns, the trust generated, and the influence of such information on decision-making by patients diagnosed with systemic lupus ery...
| Publicado en: | Clinical Medicine Insights: Arthritis & Musculoskeletal Disorders Vol. 18; pp. 1 - 11 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
6/12/2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=185940082&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 185940082 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11795441 B3KJ jtl: Clinical Medicine Insights: Arthritis & Musculoskeletal Disorders issn: 11795441 maglogo: Y pubinfo: dt: 6/12/2025 vid: 18 pid: 20732 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 185940082 185940082 185940082 10.1177/11795441251346815 185940082 ppf: 1 ppct: 10 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Usage Patterns, Trust Generated, and Influence of Information in Internet and Social Media on Decision-Making by Patients Diagnosed With Rheumatic Diseases in Latin America. aug: au: Chaparro, Camilo Andrés Fernández-Ávila, Daniel G Fuentes, Yurilis Ferreyra, Leandro Brance, María L Muñoz, Oscar Mauricio affil: Internal Medicine Department, Hospital Universitario San Ignacio, Bogotá, Colombia sug: subj: Health Information Evaluation Social Media Utilization Decision Making, Patient Rheumatic Diseases Diagnosis Trust Evaluation Internet Utilization Lupus Erythematosus, Systemic Diagnosis Human Male Female Adult Middle Age Cross Sectional Studies Latin America Information Seeking Behavior Survey Research Access to Information Smartphone Academic Medical Centers Confidence Attitude to Illness Age Factors Educational Status Immigrants Psychosocial Factors Prevalence Descriptive Research Nonexperimental Studies Questionnaires Internet Access Convenience Sample Chi Square Test Social Networks Referral and Consultation Descriptive Statistics Data Analysis Software Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Introduction: Internet and social media are widely available tools for several purposes, including search of health information. This study aims to describe the usage patterns, the trust generated, and the influence of such information on decision-making by patients diagnosed with systemic lupus erythematosus and rheumatoid arthritis. Methods: A cross-sectional study was conducted, administering a survey to patients with rheumatic diseases at multiple centers in Latin America, virtually or on paper. Three domains were evaluated: access/patterns of use, perception, and confidence generated by the health information found. Subgroup analysis based on key characteristics was performed. Results: In total, 244 surveys were analyzed, identifying 96.7 % respondents as regular internet users, mainly through smartphones (79.5%). About 86.5% used social media regularly, around 15.2 % used it for finding health information. YouTube was the most frequently used (67.6%). 64.3 % perceive searching information as straightforward and 65.6% as not frustrating; academic institutions were the most and "influencers" were the least trusted. Most expressed high confidence in the ability to use information and perceive it as beneficial. Different patterns of use, perception, and confidence were identified according to disease, age, educational level, country of origin and survey method of collection. Conclusions: This study illustrates the high prevalence of Internet and social media access in Latin America, primarily through mobile devices, which represents an opportunity to develop educational strategies for the population that have access to these tools. These strategies can be tailored according to specific use patterns and differential characteristics of distinct subgroups of patients. Plain language summary: The internet and social media are popular tools that people use for many reasons, including looking for health information. This study looked at how patients with systemic lupus erythematosus and rheumatoid arthritis use the internet and social media, how much they trust the health information they find, and how it influences their decisions about their health. Patients with these conditions were surveyed across Latin America, both online and on paper. They asked questions about how often and why they use the internet and social media, how confident they feel in the information they find, and how much they trust different sources of information. Out of 244 people surveyed, almost all (96.7%) used the internet regularly, mostly on smartphones. Most also used social media, though only 15% used it specifically for health information. YouTube was the most popular platform. Most participants found it easy to search for health information, and most did not find it frustrating. They trusted information from universities the most and from social media influencers the least. People generally felt confident using the health information they found and thought it was helpful. The study showed that there are different ways people use and trust the internet based on their disease, age, education, country, and how they completed the survey. This provides a chance to create better educational tools for these patients, tailored to their specific needs and habits. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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