'I can't take my eyes off her' problems and difficulties experienced by mothers caring for their intellectually disabled children at home: a qualitative research.

This qualitative study was conducted to learn the experiences of mothers who care for their children with intellectual disabilities at home about the problems and difficulties they experience. The study was conducted through in-depth interviews with 20 mothers who met the inclusion criteria in priva...

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Publicado en:International Journal of Developmental Disabilities Vol. 71; no. 4; pp. 610 - 626
Autores principales: Özsavran, Musa, Karakaya, Cihangir, Bahadır, Özgür
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd Jun2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jun2025
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      pub: Taylor & Francis Ltd
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        10.1080/20473869.2024.2378243
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        atl: 'I can't take my eyes off her' problems and difficulties experienced by mothers caring for their intellectually disabled children at home: a qualitative research.
      aug:
        au:
          Özsavran, Musa
          Karakaya, Cihangir
          Bahadır, Özgür
        affil: Child Care and Youth Services Department, Ahmet Erdogan Vocational School of Health Services, Zonguldak Bülent Ecevit University, Zonguldak, Türkiye
      sug:
        subj:
          Intellectual Disability
          Parents of Children with Disabilities Psychosocial Factors
          Mothers Psychosocial Factors
          Caregivers
          Home Environment
          Human
          Qualitative Studies
          Female
          Interviews
          Turkiye
          Content Analysis
          Thematic Analysis
          Support, Psychosocial
          Female
      ab: This qualitative study was conducted to learn the experiences of mothers who care for their children with intellectual disabilities at home about the problems and difficulties they experience. The study was conducted through in-depth interviews with 20 mothers who met the inclusion criteria in private and public special education rehabilitation centers in Zonguldak province between 1 January and 29 March 2024, in Türkiye. The content analysis method was used to analyze the data. As a result of the analysis of the data obtained from the interviews, six themes emerged. These themes are (1) the worn-out psychology of the mother, (2) socializing is too far for us!, (3) I am not enough for my children, (4) my child is at the center of my life, (5) my child's difficult process, and (6) I am not alone. There were many problems and difficulties experienced by mothers caring for their intellectually disabled children at home. They had created their solutions for these. The mothers who participated in the study made all the materials they used in their home environment suitable for children. They had also taken safety precautions to prevent harm to children through objects. While most of the families suffered economically, not all of the mothers felt psychologically well. However, they did not neglect their priority towards their children. They overcame these problems with the support of family, friends or health personnel. Establishing health services and social programs that support mothers in terms of both psychological issues and home care opportunities will allow mothers to feel better.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
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      ougenre: Article
    language: English
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