Views and Experiences of Dementia in People With Intellectual Disabilities: A Systematic Review of Qualitative Research.
Background: It is important to hear the perspectives of people with intellectual disabilities on dementia. This review aimed to explore views and experiences of dementia from the perspective of people with intellectual disabilities and methodologies enabling people with intellectual disabilities and...
| Publicado en: | Journal of Intellectual Disability Research Vol. 69; no. 7; pp. 533 - 546 |
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| Autores principales: | , , , , , |
| Formato: | research systematic review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jul2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=186163499&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 186163499 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09642633 EUL jtl: Journal of Intellectual Disability Research issn: 09642633 maglogo: Y pubinfo: dt: Jul2025 vid: 69 iid: 7 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 186163499 183674850 186163499 186163499 10.1111/jir.13227 186163499 ppf: 533 ppct: 13 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: Views and Experiences of Dementia in People With Intellectual Disabilities: A Systematic Review of Qualitative Research. aug: au: Carter, Joanna Spector, Aimee Ali, Afia McFeeters, Amelia Butt, Sarah Charlesworth, Georgina affil: Research Department of Clinical, Educational & Health Psychology, University College London, London, UK sug: subj: Persons with Disabilities Psychosocial Factors Intellectual Disability Dementia Epidemiology Patient Attitudes Evaluation Life Experiences Evaluation Attitude to Illness Evaluation Human Systematic Review Qualitative Studies Descriptive Statistics Psycinfo Medline World Wide Web Thematic Analysis ab: Background: It is important to hear the perspectives of people with intellectual disabilities on dementia. This review aimed to explore views and experiences of dementia from the perspective of people with intellectual disabilities and methodologies enabling people with intellectual disabilities and dementia to participate in qualitative research. Methods: Studies were identified in database searches, along with reference and citation searches. Qualitative data were reviewed using thematic synthesis and risk of bias assessed using the Critical Appraisal Skills Programme (2018). Methodologies used to include participants with intellectual disabilities and dementia were reviewed. Results: Findings from 11 studies, with a total of 47 participants, highlighted loss of ability, relationships and connection associated with dementia, counteracted by support from others, and maintenance of a sense of self through choice, relational connection and competence. A range of methodologies were identified to enable participants with intellectual disabilities and dementia to participate in research. Conclusions: This review highlights emerging, albeit demographically limited, qualitative research in this field. It suggests ways to build on this including methodologies to facilitate inclusion of people with intellectual disabilities and dementia in further research. pubtype: Academic Journal doctype: research systematic review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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