Preventing fraudulent research participation: Methodological strategies and ethical impacts.
This article addresses a growing issue in genetic counseling research: the participation of individuals who falsify demographic information or experiences to qualify for studies, often motivated by remuneration. This issue is particularly pressing in studies using social media recruitment, where det...
| Publicado en: | Journal of Genetic Counseling Vol. 34; no. 3; pp. 1 - 10 |
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| Autores principales: | , , , , , |
| Formato: | review tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jun2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=186226460&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 186226460 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10597700 41A jtl: Journal of Genetic Counseling issn: 10597700 maglogo: N pubinfo: dt: Jun2025 vid: 34 iid: 3 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 186226460 186226460 186226460 10.1002/jgc4.70048 186226460 ppf: 1 ppct: 9 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Preventing fraudulent research participation: Methodological strategies and ethical impacts. aug: au: Mayer, Cassie Tryon, Rebecca Ricks, Sarah Lane, Kara Van Hook, Emma Zayhowski, Kimberly affil: Master's Program in Genetic Counseling, Boston University Chobanian and Avedisian School of Medicine, Boston Massachusetts,, USA sug: subj: Fraud Prevention and Control Research Ethics Research Subjects Genetic Counseling Income Social Media Research Subject Recruitment Privacy and Confidentiality Genetic Research Patient Centered Care Data Quality Internet Communities ab: This article addresses a growing issue in genetic counseling research: the participation of individuals who falsify demographic information or experiences to qualify for studies, often motivated by remuneration. This issue is particularly pressing in studies using social media recruitment, where detecting fraudulent participants has become increasingly difficult. The prevalence of inaccurate data raises serious questions about the integrity, reliability, and validity of research findings. We explore potential sources of participant fraud and inconsistency informed by prior, direct experience with fraudulent participants, discussing various strategies to strengthen participant screening, data validation, and interview protocols. We also examine the challenges screening methods pose for marginalized communities, who may already harbor distrust in research or face privacy concerns. We emphasize the need for transparent, responsible approaches to participant verification and advocate for developing standardized guidelines to protect both research quality and participant rights. By promoting trust, inclusivity, and fairness in research practices, we aim to preserve the dignity of participants and ensure that genetic counseling research remains rigorous. Ultimately, we call for collective action to reinforce the integrity of research and enhance its impact on clinical practice, ensuring that evidence‐based insights guide patient‐centered care. pubtype: Academic Journal doctype: review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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