Caregiver and child perspectives of wellbeing in school-age children with childhood apraxia of speech.

Purpose: Childhood apraxia of speech (CAS) is a communication deficit that impacts a child's overall quality of life, including their academic and social interactions, yet few studies have investigated the impact from the child's perspective. Using The World Health Organization's International Class...

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Publicado en:International Journal of Speech-Language Pathology Vol. 27; no. 3; pp. 409 - 423
Autores principales: Turner Swartz, Michelle, Hitchcock, Elaine R., Leece, Megan C., Herbst, Benedette M., Preston, Jonathan L.
Formato: research tables/charts Journal Article
Publicado: Taylor & Francis Ltd June 2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: June 2025
      vid: 27
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      pub: Taylor & Francis Ltd
      place: Philadelphia, Pennsylvania
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        10.1080/17549507.2024.2364808
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        atl: Caregiver and child perspectives of wellbeing in school-age children with childhood apraxia of speech.
      aug:
        au:
          Turner Swartz, Michelle
          Hitchcock, Elaine R.
          Leece, Megan C.
          Herbst, Benedette M.
          Preston, Jonathan L.
        affil: Department of Speech-Language Pathology, Thomas Jefferson University, Philadelphia, PA, USA
      sug:
        subj:
          Patient Attitudes Evaluation
          Caregiver Attitudes Evaluation
          Apraxia of Speech (Acquired)
          Psychological Well-Being Evaluation
          Human
          International Classification of Functioning, Disability, and Health
          Child
          Adolescence
          Communication
          Interpersonal Relations
          Self Concept
          Surveys
          Descriptive Statistics
          Wilcoxon Signed Rank Test
          Spearman's Rank Correlation Coefficient
          Mann-Whitney U Test
          Friedman Test
          Social Behavior
          Emotions
          Post Hoc Analysis
          Language Tests
          Clinical Assessment Tools
          Funding Source
          Child: 6-12 years
          Adolescent: 13-18 years
      ab: Purpose: Childhood apraxia of speech (CAS) is a communication deficit that impacts a child's overall quality of life, including their academic and social interactions, yet few studies have investigated the impact from the child's perspective. Using The World Health Organization's International Classification of Functioning, Disability, and Health (ICF) framework, we examined the children's and caregivers' perspectives on the impact of CAS on their overall wellbeing. Method: Survey data were collected from 32 child-caregiver dyads for children ages 9–17 years with CAS. Items elicited responses along a 5-point scale to examine the perceived impact of children's speech impairments using the framework, including impact on communication, interpersonal interactions/relationships, and major life events. Result: Results from non-parametric statistical analyses revealed: (a) caregivers reported a significantly greater impact than children across individual ICF domains; (b) child responses were not significantly correlated with their caregiver's responses or with the child's age, gender, or severity indicators; and (c) both caregivers and children indicated the domain of communication was impacted more than other domains. Conclusion: Results suggest a potential disconnect in the perceived impact of CAS between the caregiver and child. Recommendations include facilitating a dialogue between the child-caregiver dyad and considering treatment goals that address wellbeing.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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