Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death.
Stillbirth and neonatal death are devastating pregnancy outcomes with enduring psychosocial and emotional effects on parents and families. Families need appropriate support, yet access to services is often limited. In a randomized controlled trial, we evaluated the efficacy and acceptability of a se...
| Publicado en: | Journal of Loss & Trauma Vol. 30; no. 5; pp. 708 - 733 |
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| Autores principales: | , , , , , , , , , , , , , , |
| Formato: | Artículo |
| Publicado: |
Taylor & Francis Ltd
2025
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=186345823&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 186345823 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 15325024 HZH jtl: Journal of Loss & Trauma issn: 15325024 maglogo: N pubinfo: dt: 2025 vid: 30 iid: 5 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 186345823 10.1080/15325024.2024.2415708 ppf: 708 ppct: 25 formats: fmt: – @attributes: type: T – @attributes: type: P size: 1.8MB tig: atl: Living with Loss: Evaluating an Internet-Based Program for Parents Following Perinatal Death. aug: au: Loughnan, Siobhan A. Lancaster, Ann Crocker, Sara Astell, Chrissie Griffin, Alison Wojcieszek, Aleena M. Boyle, Frances M. Ellwood, David Dean, Julie Horey, Dell Callander, Emily Jackson, Claire Seeho, Sean Shand, Antonia Flenady, Vicki affil: NHMRC Centre of Research Excellence in Stillbirth, Mater Research Institute—The University of Queensland, South Brisbane, Australia Statistics Unit, QIMR Berghofer Medical Research Institute, Herston, Australia Institute for Social Science Research, The University of Queensland, Indooroopilly, Australia School of Medicine and Dentistry, Griffith University and Gold Coast University Hospital, Southport, Australia School of Psychology and Public Health, La Trobe University, Bundoora, Australia Monash Centre for Health Research and Implementation, Monash University, Melbourne, Australia School of Public Health, University of Technology, Sydney, Australia The University of Queensland, St. Lucia, Australia Stillbirth Foundation Australia, St. Leonards, Australia The University of Sydney, Camperdown, Australia su: Psychological distress Medical care Evaluation of human services programs Internet Parent attitudes Perinatal death Psychological adaptation Randomized controlled trials Anxiety Bereavement Psychology of mothers Social support Psychology of parents Grief Patient satisfaction Well-being Mental depression Research funding Statistical sampling Descriptive statistics Control groups Pre-tests & post-tests Comparative studies sug: subj: Psychological distress Medical care Evaluation of human services programs Internet Parent attitudes Perinatal death Psychological adaptation Randomized controlled trials Anxiety Bereavement Psychology of mothers Social support Psychology of parents Grief Patient satisfaction Well-being Mental depression Internet Publishing and Broadcasting and Web Search Portals Wired Telecommunications Carriers Marketing Research and Public Opinion Polling Other Individual and Family Services Research funding Statistical sampling Descriptive statistics Control groups Pre-tests & post-tests Comparative studies keyword: bereavement neonatal death perinatal loss Stillbirth bereavement neonatal death perinatal loss Stillbirth ab: Stillbirth and neonatal death are devastating pregnancy outcomes with enduring psychosocial and emotional effects on parents and families. Families need appropriate support, yet access to services is often limited. In a randomized controlled trial, we evaluated the efficacy and acceptability of a self-guided internet-based perinatal grief program, Living with Loss (LWL), to support coping and wellbeing among bereaved parents following perinatal death. Eligible parents, largely mothers, were recruited online and randomized to the intervention arm (n = 48) or a care-as-usual (CAU) control arm (n = 47). The LWL program comprised six internet-based modules completed over 8 weeks. The primary outcome was psychological distress; secondary outcomes were perinatal grief intensity, anxiety, depression, and program satisfaction and acceptability. The LWL program reduced psychological distress at post-program compared with CAU. The program had moderate adherence rates and high program satisfaction. There were no differences in the secondary outcomes, and the effect on psychological distress was not sustained at 3-month follow-up. This study provides preliminary evidence for the utility of an internet-based perinatal grief support program to reduce psychological distress in the shorter term among bereaved parents. Further research is needed to determine how psychological distress can be minimized in the longer term, and whether self-guided internet-based support is effective for bereaved fathers and extended family members. Further research is also needed to investigate the effectiveness of the program in real-world settings. Trial Registration: Australian New Zealand Clinical Trials Registry, ACTRN12621000631808, registered prospectively on 27/05/2021; pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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