"Do I Need Anything More Specific?": Experiences of Autistic Participants in a Language-Focused Research Study.
Background: Autistic advocates have called for researchers to engage with the needs and experiences of autistic people when planning and designing research studies. The purpose of the present study was to better understand the experiences of autistic adults participating in a language research study...
| Publicado en: | American Journal of Speech-Language Pathology Vol. 34; no. 4; pp. 1967 - 1978 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
American Speech-Language-Hearing Association
Jul2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=186535574&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 186535574 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10580360 5E7 jtl: American Journal of Speech-Language Pathology issn: 10580360 maglogo: N pubinfo: dt: Jul2025 vid: 34 iid: 4 pid: 42 pub: American Speech-Language-Hearing Association place: Rockville, Maryland artinfo: ui: 186535574 186535574 186535574 10.1044/2025_AJSLP-24-00470 186535574 ppf: 1967 ppct: 11 formats: tig: atl: "Do I Need Anything More Specific?": Experiences of Autistic Participants in a Language-Focused Research Study. aug: au: Coburn, Kelly L. Shipley, Emma P. affil: Department of Speech-Language Pathology & Audiology, Towson University, MD sug: subj: Autism Spectrum Disorder Psychosocial Factors Research Subjects Psychosocial Factors Research, Medical Patient Attitudes Evaluation Language Development Evaluation Patient Participation Interviews Human Male Female Adult Narratives Research Subject Recruitment Secondary Analysis Thematic Analysis Task Performance and Analysis Language Processing Middle Age Race Factors Ethnic Groups Educational Status Sex Factors Scales Questionnaires Sociodemographic Factors Psychological Distress Evaluation Depression Psychosocial Factors Anxiety Psychosocial Factors Linguistics Evaluation Neurodiversity Communication Skills Speech Disorders Psychosocial Factors Open-Ended Questionnaires Speech Acoustics Evaluation Social Skills Grammar Semantics Research Methodology Research Priorities Snowball Sample Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Background: Autistic advocates have called for researchers to engage with the needs and experiences of autistic people when planning and designing research studies. The purpose of the present study was to better understand the experiences of autistic adults participating in a language research study and how researchers can design more accessible future studies. Method: The present study was a secondary thematic analysis of data recorded during a larger study of spoken narratives by autistic adults. During virtual research interviews, participants frequently expressed comments about the nature of the research tasks and their experiences of participation in the study. The full interview transcripts were analyzed to identify data relating to participants' subjective experiences of research participation. Thematic analysis was applied to transcripts of all comments not directly elicited by the structured narrative prompts. Results: Four main topics and their subthemes were established based on analysis of the data set: processing strategies, attitudes toward research, awareness of the research process, and self-reflective comments about the narrative tasks. The main topics and their subthemes are discussed to derive insight into the experiences of autistic research participants. Discussion: The findings are especially relevant to researchers and practitioners who conduct spoken language tasks with autistic people. To make research participation more accessible and affirming for autistic people, researchers can share specific information about what to expect before, during, and after participation. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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