Collecting Data on the Social Determinants of Health to Advance Health Equity in Cancer Care in Canada: Patient and Community Perspectives.
Simple Summary: Even though cancer care has improved, differences in care and outcomes still exist among different groups of people. One way to help reduce these differences is by collecting information about the social factors that affect health, known as the social determinants of health (SDOH). H...
| Publicado en: | Current Oncology Vol. 32; no. 7; pp. 406 - 426 |
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| Autores principales: | , , , , , , , , , , , , |
| Formato: | Journal Article |
| Publicado: |
MDPI
Jul2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=186934671&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 186934671 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 11980052 5EKK jtl: Current Oncology issn: 11980052 maglogo: N pubinfo: dt: Jul2025 vid: 32 iid: 7 pid: 97109 pub: MDPI artinfo: ui: 186934671 10.3390/curroncol32070406 186934671 ppf: 406 ppct: 20 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Collecting Data on the Social Determinants of Health to Advance Health Equity in Cancer Care in Canada: Patient and Community Perspectives. aug: au: Bender, Jacqueline L. Tong, Eryn An, Ekaterina Liu, Zhihui Amy Shapiro, Gilla K. Avery, Jonathan Chu, Alanna Schulz-Quach, Christian Hales, Sarah Maybee, Alies Sayani, Ambreen Pinto, Andrew Lofters, Aisha affil: Department of Supportive Care, Princess Margaret Cancer Centre, University Health Network, Toronto, ON M5G 2M9, Canada sug: ab: Simple Summary: Even though cancer care has improved, differences in care and outcomes still exist among different groups of people. One way to help reduce these differences is by collecting information about the social factors that affect health, known as the social determinants of health (SDOH). However, this information is not collected regularly in many parts of the world. This study, done in two parts, looked at what cancer patients and community members in Canada think about hospitals collecting SDOH information. Most people were comfortable with the hospital collecting SDOH data. However, patients and community members were concerned about privacy, discrimination, relevance to care, and data accuracy. To collect SDOH data in a way that works for patients, it is important to explain why the information is being collected, train healthcare staff, protect patient privacy, and have clear plans to use the information to improve care. Despite advances in cancer care, disparities persist. The collection of the social determinants of health (SDOH) is fundamental to addressing disparities. However, SDOH are inconsistently collected in many regions of the world. This two-phase multiple methods study examined patient and community perspectives regarding SDOH data collection in Canada. In phase 1, a survey was administered to patients at a cancer centre (n = 549) to assess perspectives on an SDOH data collection tool. In phase 2, broader perspectives were sought through a community consultation with patient partners experiencing structural inequality (n = 15). Most participants were comfortable with SDOH data collection. Of survey respondents, 95% were comfortable with the collection of language, birthplace, sex, gender, education, and disability, and 82% to 94% were comfortable with SES, sexual orientation, social support, and race/ethnicity. Discomfort levels did not differ across subgroups, except women were more uncomfortable disclosing SES (OR: 2.00; 95%CI: 1.26, 3.19). Most (71%) preferred face-to-face data collection with a healthcare professional and only half were comfortable with storage of SDOH in electronic health records. Open-ended survey responses (n = 1533) and the community consultation revealed concerns about privacy, discrimination, relevance to care, and data accuracy. SDOH data collection efforts should include a clear rationale for patients, training for providers, strong data privacy and security measures, and actionable strategies to address needs. pubtype: Academic Journal doctype: Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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