'Feeling like you can't do anything because you don't know where to start'—Parents' Perspectives of Barriers and Facilitators to Accessing Early Detection for Children at Risk of Cerebral Palsy.
Background: Early detection of cerebral palsy (CP) risk is possible from 12 weeks corrected gestational age (CGA) using standardised assessments; however, up to half of children at risk are not referred early, missing out on early intervention. We investigated the barriers and facilitators to access...
| Publicado en: | Child: Care, Health & Development Vol. 51; no. 4; pp. 1 - 14 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Jul2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=187021999&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 187021999 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 03051862 6NX jtl: Child: Care, Health & Development issn: 03051862 maglogo: Y pubinfo: dt: Jul2025 vid: 51 iid: 4 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 187021999 187021999 187021999 10.1111/cch.70100 187021999 ppf: 1 ppct: 13 formats: fmt: – @attributes: type: T – @attributes: type: C – @attributes: type: P tig: atl: 'Feeling like you can't do anything because you don't know where to start'—Parents' Perspectives of Barriers and Facilitators to Accessing Early Detection for Children at Risk of Cerebral Palsy. aug: au: Davidson, Sue‐Anne Thornton, Ashleigh Hersh, Deborah Harris, Courtenay Elliott, Catherine Valentine, Jane affil: Kids Rehab WA, Perth Children's Hospital, Perth Western Australia,, Australia sug: subj: Cerebral Palsy Risk Factors Parents of Children with Disabilities Psychosocial Factors Early Childhood Intervention Psychosocial Factors Health Services Accessibility Risk Assessment Human Qualitative Studies Semi-Structured Interview Thematic Analysis Child Child: 6-12 years ab: Background: Early detection of cerebral palsy (CP) risk is possible from 12 weeks corrected gestational age (CGA) using standardised assessments; however, up to half of children at risk are not referred early, missing out on early intervention. We investigated the barriers and facilitators to accessing early intervention from the perspective of parents of children who did not receive services by 6 months CGA. Methods: Parents of children with CP were invited to participate in qualitative semistructured interviews. Reflexive thematic analysis was used to analyse the data and develop themes. Results: Eight mothers of children who did not receive standardised screening participated in interviews, from which three themes, 'responding to delays', 'systemic barriers' and 'complexities of diagnosis', were developed from the data. Conclusions: Parents require more support to access and engage in early detection services; health system processes are difficult to navigate, and health professionals require education and training to recognise risk factors for CP in all health settings and refer promptly. Improving system processes, education and training and partnering early with parents to improve their experience when interacting with the health system may increase early engagement and optimise long‐term outcomes for children at risk of CP and their families. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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