Implementing a Nordic-Baltic Federated Health Data Network: A Case Report...20th World Congress on Medical and Health Informatics (MEDINFO), August 9-13, 2025, Taipei, Taiwan
Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity, and legal barriers. To study some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, c...
| Publicado en: | Studies in Health Technology & Informatics Vol. 329; pp. 1241 - 1246 |
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| Autores principales: | , , , , , , , , , , , , , , , , |
| Formato: | proceedings research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=187335055&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 187335055 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09269630 U1V jtl: Studies in Health Technology & Informatics issn: 09269630 maglogo: N pubinfo: dt: 2025 vid: 329 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 187335055 187335055 187335055 10.3233/SHTI251037 187335055 ppf: 1241 ppct: 5 formats: tig: atl: Implementing a Nordic-Baltic Federated Health Data Network: A Case Report...20th World Congress on Medical and Health Informatics (MEDINFO), August 9-13, 2025, Taipei, Taiwan aug: au: CHOMUTARE, Taridzo BARBIC, Aleksandar PELTONEN, Laura-Maria ELUNURM, Silja LUNDBERG, Peter JÖNSSON, Arne ENELING, Emma GERSTENBERGER, Ciprian-Virgil SIGGAARD, Troels KOLDE, Raivo JERDHAF, Oskar HANSSON, Martin MAKHLYSHEVA, Alexandra MUZNY, Miroslav YLIPÄÄ, Erik BRUNAK, Søren DALIANIS, Hercules affil: Norwegian Centre for E-health Research, Tromsø, Norway sug: subj: Information Systems Organizations Electronic Data Interchange International Relations Implementation Science Congresses and Conferences Taiwan Taiwan Multimethod Studies Geographic Locations Descriptive Statistics Diffusion of Innovation Adaptation, Psychological Experimental Studies Natural Language Processing Case Studies ab: Centralized collection and processing of healthcare data across national borders pose significant challenges, including privacy concerns, data heterogeneity, and legal barriers. To study some of these challenges, we formed an interdisciplinary consortium to develop a federated health data network, comprised of six institutions across five countries, to facilitate Nordic-Baltic cooperation on secondary use of health data. The objective of this report is to offer early insights into our experiences developing this network. We employed a mixed-methods approach, combining both experimental design and implementation science to assess the factors influencing the implementation of our network. Technically, our experiments indicate that the network functions without significant performance degradation compared to centralized simulation. While use of interdisciplinary approaches holds a potential to solve challenges associated with establishing such collaborative networks, our findings turn the spotlight on the uncertain regulatory landscape playing catch up and the significant operational costs. pubtype: Academic Journal doctype: proceedings research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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