Assessing Federal Policies to Reduce Economic Barriers to Clinical Trial Enrollment.

The risk of losing access to crucial means-tested programs — like Medicaid, Supplemental Security Income (SSI), the Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance for Needy Families (TANF) — poses a barrier to the enrollment of low-income Americans in clinical trials. Thi...

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Publicado en:Journal of Law, Medicine & Ethics Vol. 53; no. 2; pp. 200 - 210
Autores principales: Albert-Rozenberg, Daniel, Peloquin, David, Liss, Joseph, Hanson, Erika, Bierer, Barbara E.
Formato: tables/charts Journal Article
Publicado: Cambridge University Press Summer2025
Acceso en línea:Ver este registro en EBSCOhost
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        atl: Assessing Federal Policies to Reduce Economic Barriers to Clinical Trial Enrollment.
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        au:
          Albert-Rozenberg, Daniel
          Peloquin, David
          Liss, Joseph
          Hanson, Erika
          Bierer, Barbara E.
        affil: Quinn Emanuel Urquhart and Sullivan LLP, Boston, Massachusetts, US
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        subj:
          Federal Government United States
          Public Policy Evaluation
          Clinical Trials Legislation and Jurisprudence
          Research Subject Recruitment Economics
          Poverty
          Americans
          Risk Assessment
          Food Assistance
          Economic and Social Security
          Medicaid
          Minority Groups
          Ethnic Groups
          Persons with Disabilities
          Rural Population
          Aged
          United States
          Clinical Trials Economics
          Aged: 65+ years
      ab: The risk of losing access to crucial means-tested programs — like Medicaid, Supplemental Security Income (SSI), the Supplemental Nutrition Assistance Program (SNAP), and Temporary Assistance for Needy Families (TANF) — poses a barrier to the enrollment of low-income Americans in clinical trials. This burden likely disproportionately affects members of racial and ethnic minority groups, people with disabilities, elderly individuals, and rural populations, and may frustrate efforts to reflect the US population in clinical trial enrollment. To help achieve representative clinical trials for myriad conditions, Congress should pass legislation excluding payments to clinical trial participants from gross income and expand the clinical trial compensation exclusions for means-tested programs established in the Ensuring Access to Clinical Trials Act of 2015.
      pubtype: Academic Journal
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        tables/charts
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    language: English
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