Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants.
Autistic individuals with higher support needs, including those with co-occurring intellectual disability (ID) and language impairment (LI), are underrepresented in research. Researchers who attempt to include this population face unique challenges regarding participant recruitment, informed consent...
| Publicado en: | Journal of Autism & Developmental Disorders Vol. 55; no. 9; pp. 3410 - 3416 |
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| Autores principales: | , , , |
| Formato: | review Journal Article |
| Publicado: |
Springer Nature
Sep2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=187434611&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 187434611 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 01623257 AUT jtl: Journal of Autism & Developmental Disorders issn: 01623257 maglogo: N pubinfo: dt: Sep2025 vid: 55 iid: 9 pid: 237 pub: Springer Nature place: New York, New York artinfo: ui: 187434611 185675910 187434611 187434611 10.1007/s10803-025-06905-w 187434611 ppf: 3410 ppct: 6 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Inclusion of Individuals with Autism and Co-Occurring Intellectual Disability or Language Impairment as Research Participants. aug: au: Reuben, Katherine E. Arias, Jalayne J. Self-Brown, Shannon Vinoski Thomas, Erin affil: https://ror.org/03qt6ba18 School of Public Health, Georgia State University, P.O. Box 3995, 140 Decatur St. SE, 30303, Atlanta, GA, USA sug: subj: Autism Spectrum Disorder Psychosocial Factors Intellectual Disability Psychosocial Factors Language Disorders Psychosocial Factors Comorbidity Research Subjects Patient Selection Ethical Issues Privacy and Confidentiality Health Services Accessibility Research, Medical Autism Spectrum Disorder Complications Research Ethics Conceptual Framework Support, Psychosocial ab: Autistic individuals with higher support needs, including those with co-occurring intellectual disability (ID) and language impairment (LI), are underrepresented in research. Researchers who attempt to include this population face unique challenges regarding participant recruitment, informed consent, accurate measurement, and protecting privacy and confidentiality. This leads to gaps in understanding as well as a lack of evidence-based support for clinical and public health practice. Careful consideration is needed to ensure that autism research is appropriately inclusive and does not unduly burden vulnerable populations. This commentary uses the Kass framework as an example scaffold for navigating complex ethical challenges and improving accessibility and fairness in autism research. It reviews existing literature on the topic, and the resulting recommendations are informed by autistic individuals with substantial support needs. Increased representation of the full autism spectrum in research is necessary to ensure equitable health outcomes for all autistic individuals. Ethical analysis, guidance from autism research organizations, and recommendations from autistic adults can assist with this process. pubtype: Academic Journal doctype: review Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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