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A survey of long-term NICU developmental follow-up practices in gastroschisis patients.

Objective: To (1) elucidate current practices of NICU developmental follow-up (NDFU) programs for gastroschisis (GS) patients, (2) identify potential gaps in knowledge and care, and (3) identify future directions for research and clinical care. Study design: An online survey was distributed to acade...

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Published in:Journal of Perinatology Vol. 45; no. 8; pp. 1114 - 1119
Main Authors: Rundell, Maddie R., Miller, Lauren E., Warner, Barbara B., Wagner, Amy J.
Format: research tables/charts Journal Article
Published: Springer Nature Aug2025
Online Access:View this record in EBSCOhost
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      dt: Aug2025
      vid: 45
      iid: 8
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      pub: Springer Nature
      place: Dordrecht, <Blank>
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        10.1038/s41372-025-02300-6
        187434743
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        atl: A survey of long-term NICU developmental follow-up practices in gastroschisis patients.
      aug:
        au:
          Rundell, Maddie R.
          Miller, Lauren E.
          Warner, Barbara B.
          Wagner, Amy J.
        affil: https://ror.org/00qqv6244 Pediatric Surgery, Medical College of Wisconsin, Milwaukee, WI, USA
      sug:
        subj:
          Gastroschisis
          Intensive Care Units, Neonatal
          Infant Development
          After Care
          Practice Patterns
          Child Health Services
          Human
          Descriptive Statistics
          Gestational Age
          Funding Source
          Surveys
          Academic Medical Centers
          Practice Guidelines
      ab: Objective: To (1) elucidate current practices of NICU developmental follow-up (NDFU) programs for gastroschisis (GS) patients, (2) identify potential gaps in knowledge and care, and (3) identify future directions for research and clinical care. Study design: An online survey was distributed to academic centers caring for GS patients who also participate in the Gastroschisis Outcomes of Delivery (GOOD) Study to evaluate practices of NDFU programs. Results: There was an 89% response rate, with 18 centers participating. Sixty-one percent of NDFU programs did not routinely follow GS patients. The remaining 39% had variable guidelines for follow-up. Eligibility criteria, frequency of visits, gestational age cutoff for inclusion, and duration of follow-up were all inconsistent. Conclusion: Many NDFU programs do not routinely follow GS patients despite previous literature demonstrating they are at potentially elevated risk for worse developmental outcomes. Substantial variability in NDFU practice patterns demonstrates the need for quality long-term data.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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