Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities.

Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses interviews and focuses mainly on people with greater communication skills. One priority is to expand the resear...

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Publicado en:Journal of Applied Research in Intellectual Disabilities Vol. 38; no. 4; pp. 1 - 13
Autores principales: Hall, Sarah A., Stancliffe, Roger J., Anderson, Lynda Lahti
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Jul2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Jul2025
      vid: 38
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Using Supporters to Increase Participation in Qualitative Research Interviews by People With Intellectual Disabilities.
      aug:
        au:
          Hall, Sarah A.
          Stancliffe, Roger J.
          Anderson, Lynda Lahti
        affil: Institute on Community Integration, University of Minnesota, Minneapolis Minnesota, , USA
      sug:
        subj:
          Intellectual Disability
          Persons with Disabilities Psychosocial Factors
          Research Subjects Psychosocial Factors
          Research, Medical
          Funding Source
          Human
          Male
          Female
          Middle Age
          Aged
          Descriptive Statistics
          Multimethod Studies
          Semi-Structured Interview
          Thematic Analysis
          Communication Skills
          Data Analysis Software
          Open-Ended Questionnaires
          Support, Psychosocial
          Middle Aged: 45-64 years
          Aged: 65+ years
          Male
          Female
      ab: Background: Researchers need to hear directly from individuals with intellectual disabilities to better understand their experiences and perspectives. However, much inclusive research uses interviews and focuses mainly on people with greater communication skills. One priority is to expand the research techniques used to be more inclusive of people with higher support needs. Method: Qualitative analysis of interview transcripts identified themes related to a support person's roles in assisting individuals' interview participation. Quantitative analysis identified factors related to the co‐creation of responses, including turn‐taking. Results: Supporters helped participants to convey knowledge about the individuals' experiences. They provided encouragement and informational support. Supporters helped explain interview questions and co‐create answers. These supporters played a supportive role and did not overpower or silence the responses of research participants. Conclusions: Including supporters chosen by research participants with intellectual disabilities as a support person during qualitative research interviews may be an effective tool in inclusive research.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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