Healthcare Barriers and Inequities: The Lived Experiences of Women With Intellectual Disabilities in Chile.

Background: Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women with mild to moderate intellectual disabilities in Chile and their interactions with healthcare systems. Method: A qualitative design was used, collecting data...

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Publicado en:British Journal of Learning Disabilities Vol. 53; no. 3; pp. 446 - 457
Autores principales: Álvarez‐Aguado, Izaskun, Córdova, Vanessa Vega, Roselló‐Peñaloza, Miguel, Farhang, Maryam, Rivera, Felipe Muñoz La, González‐Carrasco, Félix, González, Herbert Spencer
Formato: research tables/charts Journal Article
Publicado: Wiley-Blackwell Sep2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2025
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      pub: Wiley-Blackwell
      place: Malden, Massachusetts
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        atl: Healthcare Barriers and Inequities: The Lived Experiences of Women With Intellectual Disabilities in Chile.
      aug:
        au:
          Álvarez‐Aguado, Izaskun
          Córdova, Vanessa Vega
          Roselló‐Peñaloza, Miguel
          Farhang, Maryam
          Rivera, Felipe Muñoz La
          González‐Carrasco, Félix
          González, Herbert Spencer
        affil: Faculty of Health and Social Sciences, Universidad de Las Américas (Chile), Santiago, Chile
      sug:
        subj:
          Health Services Accessibility Evaluation
          Healthcare Disparities Evaluation
          Women Psychosocial Factors
          Persons with Intellectual Disabilities Psychosocial Factors
          Severity of Disability
          Patient Attitudes Evaluation
          Human
          Chile
          Qualitative Studies
          Semi-Structured Interview
          Communication Barriers
          Discrimination
          Health Services Needs and Demand
          Support, Psychosocial
          Nomenclature
          Time
          Audiovisuals
          Attitude of Health Personnel
          Patient Autonomy
          Attitude to Disability
          Counseling
          Patient Participation
          Sex Factors
          Social Inclusion Education
          Patient Navigation
          Health Personnel Education
          Patient Education
          Adult
          Middle Age
          Aged
          Health Inequities
          Culture
          Thematic Analysis
          Female
          Funding Source
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Female
      ab: Background: Women with intellectual disabilities face major barriers to healthcare access. This study explored the experiences of 120 women with mild to moderate intellectual disabilities in Chile and their interactions with healthcare systems. Method: A qualitative design was used, collecting data through semi‐structured interviews to examine communication challenges, discrimination and unmet support needs. Results: Participants reported difficulties understanding medical terminology, limited time for questions and a lack of visual aids. They also experienced discrimination, including infantilization and negative provider attitudes, which undermined their autonomy. The absence of tailored support, such as simplified materials and personalized guidance, further hindered their engagement with healthcare services. Conclusions: Findings highlighted systemic inequities influenced by gender and disability biases. Participants stressed the need for inclusive provider training and accessible communication tools. Recommendations included visual aids, specialized healthcare navigation support, and inclusive health education programs to improve equitable healthcare access. Summary: Women with intellectual disabilities have trouble getting good healthcare.The study looked at the experiences of 120 women in Chile and the problems they faced.The biggest problems were hard‐to‐understand medical language, discrimination and lack of support. Doctors used complicated words, did not give enough time for questions, and did not always treat women with respect.Healthcare should be easier to understand and more inclusive. Doctors and nurses need training, medical information should use simple words and pictures, and women should get more support to understand their health.Fixing these problems will help women get better healthcare and be treated with respect. Everyone deserves clear, fair and supportive medical care.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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