Implementation outcomes of a patient decision-aid in a diverse population with systemic lupus erythematosus in 15 US rheumatology clinics.

Objective The objective of this study was to examine the clinical outcomes during the implementation of a self-administered patient decision-aid (PtDA) for lupus. Methods We provided an effective computerized lupus PtDA in 15 rheumatology outpatient clinics 2019–2024 (including the COVID pandemic)....

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Publicado en:Rheumatology Vol. 64; no. 8; pp. 4631 - 4641
Autores principales: Singh, Jasvinder A, Hearld, Larry R, Eisen, Seth, Chatham, W Winn, Narain, Sonali, Annapureddy, Narender, Kamen, Diane L, Trotter, Kimberly, Majithia, Vikas, Ching, Cathy Lee, Aouhab, Zineb, Venuturupalli, Swamy, Wallace, Daniel J, Ramsey-Goldman, Rosalind, Kim, Alfred, McMahon, Maureen, Lim, S Sam, Bhairavarasu, Kalpana, Meara, Alexa, Kalunian, Kenneth
Formato: research tables/charts Journal Article
Publicado: Oxford University Press / USA Aug2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Aug2025
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      pub: Oxford University Press / USA
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        10.1093/rheumatology/keaf205
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        atl: Implementation outcomes of a patient decision-aid in a diverse population with systemic lupus erythematosus in 15 US rheumatology clinics.
      aug:
        au:
          Singh, Jasvinder A
          Hearld, Larry R
          Eisen, Seth
          Chatham, W Winn
          Narain, Sonali
          Annapureddy, Narender
          Kamen, Diane L
          Trotter, Kimberly
          Majithia, Vikas
          Ching, Cathy Lee
          Aouhab, Zineb
          Venuturupalli, Swamy
          Wallace, Daniel J
          Ramsey-Goldman, Rosalind
          Kim, Alfred
          McMahon, Maureen
          Lim, S Sam
          Bhairavarasu, Kalpana
          Meara, Alexa
          Kalunian, Kenneth
        affil: Medicine Service, Michael E. DeBakey VA Medical Center, Houston, TX, USA
      sug:
        subj:
          Decision Support Techniques
          Decision Making, Computer Assisted
          Decision Making, Shared
          Lupus Erythematosus, Systemic Therapy
          Rheumatology
          Outpatient Service United States
          Quality Improvement
          Funding Source
          United States
          Human
          Male
          Female
          Adult
          Middle Age
          Psychological Safety
          Questionnaires
          Scales
          COVID-19 Pandemic
          Summated Rating Scaling
          Odds Ratio
          Confidence Intervals
          Attitude to Change
          Implementation Science
          Commitment
          Academic Medical Centers
          Private Practice
          Attitude of Health Personnel
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Male
          Female
      ab: Objective The objective of this study was to examine the clinical outcomes during the implementation of a self-administered patient decision-aid (PtDA) for lupus. Methods We provided an effective computerized lupus PtDA in 15 rheumatology outpatient clinics 2019–2024 (including the COVID pandemic). We undertook Organizational Readiness to Implement Change Surveys (ORICs) and Team Learning and Psychological Safety Surveys (TLPSSs) at baseline. The primary study outcome objective measure, percent penetration/reach, was defined as the number of patients who viewed the lupus PtDA at the end of the study, divided by the total number of eligible patients (times 100). We used validated clinical personnel surveys to examine the perceived lupus PtDA appropriateness, acceptability, feasibility, success, and permanence, at 4 months, 12 months and 24 months post-PtDA implementation. Results Among the sites, the clinical personnels' (n  = 184) baseline ORIC commitment and efficacy scores (a 0–5 scale, higher = better) ranged from 3.5 to 4.2, and 3.4 to 4.4, respectively; the TLPSS scores (a 0–7 scale, higher = better) were 3.9–5.5 for internal learning, 3.7–5.6 for external learning, and 4.3–5.5 for psychological safety. The penetration (primary outcome) among 15 geographically diverse US rheumatology clinics ranged from 3% to 44%. We found that the total number of providers in the clinic was positively associated with higher penetration. Clinical personnel–perceived lupus PtDA outcomes were optimal at 4 months (all scale scores ranged from 1 to 5, higher = better): (i) appropriateness, 3.43 (s. d. 0.86); (ii) acceptability, 3.53 (s. d. 0.83); (iii) feasibility, 3.44 (s. d. 0.71); (iv) success, 3.41 (s. d. 0.73); and (v) permanence, 3.22 (s. d. 0.74). Conclusion We implemented a lupus PtDA with varied success rates during the COVID pandemic; more providers were associated with higher clinic penetration. Clinical personnel perceived high lupus PtDA appropriateness, acceptability, feasibility, success, and permanence that persisted up to 24 months. Trial Registration ClinicalTrials.gov , http://clinicaltrials.gov , NCT03735238.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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