Patients' and caregivers' needs in palliative care from the perspective of home care providers: A qualitative study.
Background & Aim: Palliative care is an approach designed to enhance the quality of life and alleviate suffering associated with life-threatening illnesses. It should also be included in Home Care Services. This study aimed to identify the needs of patients in palliative care and their caregivers fr...
| Published in: | Nursing Practice Today Vol. 12; no. 4; pp. 393 - 403 |
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| Main Authors: | , , , , , |
| Format: | research tables/charts Journal Article |
| Published: |
Tehran University of Medical Sciences
2025
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=187988751&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 187988751 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 23831154 JKHN jtl: Nursing Practice Today issn: 23831154 maglogo: N pubinfo: dt: 2025 vid: 12 iid: 4 pid: 21783 pub: Tehran University of Medical Sciences artinfo: ui: 187988751 187988751 187988751 10.18502/npt.v12i4.19652 187988751 ppf: 393 ppct: 10 formats: fmt: @attributes: type: P tig: atl: Patients' and caregivers' needs in palliative care from the perspective of home care providers: A qualitative study. aug: au: Arantes, Vitória Mesquita Jones, Jordan Cole Giansante, Thais Ribeiro, Simone Cristina Pelegrino, Juliana Bolela, Fabiana affil: Ribeirão Preto College of Nursing, University of São Paulo, Ribeirão Preto, Brazil sug: subj: Patients Psychosocial Factors Caregivers Psychosocial Factors Needs Assessment Palliative Care Attitude of Health Personnel Home Health Care Human Male Female Qualitative Studies Brazil Multidisciplinary Care Team Semi-Structured Interview Primary Health Care Convenience Sample Exploratory Research Descriptive Research Content Analysis Thematic Analysis Male Female ab: Background & Aim: Palliative care is an approach designed to enhance the quality of life and alleviate suffering associated with life-threatening illnesses. It should also be included in Home Care Services. This study aimed to identify the needs of patients in palliative care and their caregivers from the perspective of Home Care Service providers. Methods & Materials: This qualitative research study was conducted with a multidisciplinary team of providers under the Home Care Service program in the interior of São Paulo state, Brazil. Data were collected through semi-structured interviews and analyzed using the Content Analysis method. Results: Three categories emerged from the provider's narratives: insufficient knowledge about palliative care, the needs of patients in palliative care, and the needs of caregivers of patients in palliative care. Additionally, nine subcategories were identified: palliative care as end-of-life care, palliative care as an opportunity to provide comfort measures, lack of palliative care training for the multidisciplinary team, pain management, nutrition, emotional support, and psychological care, presence of family members, psychological support, and assistance in care management. Conclusion: This study identified the needs of patients in palliative care and their caregivers from the perspective of Home Care staff. The primary needs of patients, as identified by the staff, encompassed both physical and psychosocial support, including the presence of family members. For these patients' caregivers, staff emphasized the importance of psychological support and assistance in managing care. The study highlights the importance of continuous education in the home palliative care setting that recognizes the needs of both patients and caregivers. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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