Trends in the Burden for Patients Participating in Industry-Funded Clinical Trials.

Background: During the past five years, there has been growing interest among pharmaceutical companies in incorporating patient needs and preferences early in the protocol design process. Through individual and larger group studies, the Tufts Center for the Study of Drug Development (Tufts CSDD) has...

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Publicado en:Therapeutic Innovation & Regulatory Science Vol. 59; no. 5; pp. 893 - 901
Autores principales: Dirks, Abigail, Botto, Emily, Smith, Zachary, Getz, Kenneth
Formato: research tables/charts Journal Article
Publicado: Springer Nature Sep2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Sep2025
      vid: 59
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      pub: Springer Nature
      place: New York, New York
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        atl: Trends in the Burden for Patients Participating in Industry-Funded Clinical Trials.
      aug:
        au:
          Dirks, Abigail
          Botto, Emily
          Smith, Zachary
          Getz, Kenneth
        affil: https://ror.org/05wvpxv85 Tufts Center for the Study of Drug Development, Tufts University School of Medicine, Boston, MA, USA
      sug:
        subj:
          Protocols
          Research Subject Recruitment Trends
          Clinical Trials
          Needs Assessment
          Patient Preference
          Treatment Outcomes
          Pharmaceutical Companies
          Human
          Collaboration
          Questionnaires
          Diagnostic Tests, Routine
          Algorithms
          Research Dropouts
          Surveys
          Software
          Research Subject Retention
          Diagnostic Imaging
          T-Tests
          Analysis of Variance
          Post Hoc Analysis
      ab: Background: During the past five years, there has been growing interest among pharmaceutical companies in incorporating patient needs and preferences early in the protocol design process. Through individual and larger group studies, the Tufts Center for the Study of Drug Development (Tufts CSDD) has collaborated with 14 pharmaceutical companies in applying a validated approach early in the protocol design process to assess patient participation burden. Data from these assessments has been aggregated to analyze trends in participation burden between 2011 and 2022. Methods: 156 phase II and III protocols were analyzed. Results: Overall burden for patients to participate in phase II and III clinical trials has been rising steadily since 2011. Procedures contributing most to participation burden include patient questionnaires, lab and blood work and routine procedures conducted at each planned visit. A notable increase in the average duration of each visit per protocol was observed in large part due to the volume of procedures performed per visit. A growing proportion of procedures contributing to participation burden are those supporting supplementary, tertiary and exploration endpoints. The results of this aggregate analysis demonstrate the value of assessing patient participation burden to inform protocol design optimization.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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