Qualitative evaluation to improve participant engagement and retention in remote COVID-19 treatment trials.

Clinical trials, although recognized as the gold standard for scientific research, encounter various challenges with participant recruitment and retention. Yet, given the surge in global research endeavors during the COVID-19 pandemic, mass recruitment and retention were needed to ensure study power...

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Publicado en:Discover Public Health Vol. 22; no. 1; pp. 1 - 16
Autores principales: Perez-Brumer, Amaya, Balasa, Rebecca, Doshi, Aarti S., Bowra, Andrea, Brisson, Julien, Philbin, Morgan M., Doan, Thuy, Oldenburg, Catherine E.
Formato: research tables/charts Journal Article
Publicado: Springer Nature 9/24/2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: 9/24/2025
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      pub: Springer Nature
      place: New York, New York
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        10.1186/s12982-025-00970-3
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        atl: Qualitative evaluation to improve participant engagement and retention in remote COVID-19 treatment trials.
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          Perez-Brumer, Amaya
          Balasa, Rebecca
          Doshi, Aarti S.
          Bowra, Andrea
          Brisson, Julien
          Philbin, Morgan M.
          Doan, Thuy
          Oldenburg, Catherine E.
        affil: https://ror.org/03dbr7087 Dalla School of Public Health, University of Toronto, M5T 3M7, Toronto, ON, Canada
      sug:
        subj:
          Clinical Trials
          COVID-19
          Research Subject Recruitment
          Research Subject Retention
          Motivation
          Human
          Male
          Female
          Adult
          Middle Age
          Aged
          Aged, 80 and Over
          Prospective Studies
          Qualitative Studies
          Comparative Studies
          Descriptive Statistics
          Purposive Sample
          Semi-Structured Interview
          Questionnaires
          Funding Source
          Adult: 19-44 years
          Middle Aged: 45-64 years
          Aged: 65+ years
          Aged, 80 & over
          Male
          Female
      ab: Clinical trials, although recognized as the gold standard for scientific research, encounter various challenges with participant recruitment and retention. Yet, given the surge in global research endeavors during the COVID-19 pandemic, mass recruitment and retention were needed to ensure study power. While participant engagement in clinical research has been investigated, there is limited literature underscoring motivations for participation in COVID-19 clinical trials conducted remotely. To address this gap, we conducted a longitudinal, qualitative evaluation study of participant engagement and retention in a remote, COVID-19 clinical trial. In-depth, semi-structured interviews were conducted between December 2020-March 2021 (timepoint 1; n = 19) and January–February 2022 (timepoint 2; n = 11) to gain insights from participants regarding their experiences, motivations, and challenges with clinical trial engagement during the COVID-19 pandemic. Findings identified several factors described to increase participant engagement, including perceived contribution to the greater good, protecting oneself and others, and gaining improved access to healthcare. Further, key themes underscoring the enhancement of retention, such as perceived trial-related challenges and recommendations for future studies, were also identified. Findings underscore the utility of embedding qualitative methods within clinical trials, and how they contribute to a broader understanding of factors influencing participation in COVID-19 trials while providing valuable insights to enhancing recruitment and retention strategies. Consequently, this study provides essential knowledge aimed at optimizing participant engagement and retention in clinical trials, thereby advancing our comprehension of and response to research mobilization during unprecedented events.
      pubtype: Academic Journal
      doctype:
        research
        tables/charts
        Journal Article
      ougenre: Article
    language: English
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