What Are Ethical Merits and Drawbacks of Viewing "Medical Mysteries" as Human Subject Research?

Patient-subjects' participation in an Undiagnosed Diseases Network (UDN) protocol can afford access to innovative diagnostic techniques, especially in genomic medicine, which can shorten the time it takes to accurately diagnose a so-called "medical mystery." But UDN research processes can be complex...

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Bibliographic Details
Published in:AMA Journal of Ethics Vol. 27; no. 10; pp. 718 - 726
Main Authors: Doyle, Tom A., Conboy, Erin
Format: case study CEU Journal Article
Published: American Medical Association Oct2025
Online Access:View this record in EBSCOhost