Participant Engagement, Epistemic Injustice, and Early‐Phase Implanted Neural Device Research.
In recent years, participant engagement initiatives in research on implanted neural devices have significantly increased. However, there remains little consensus on the motivations, goals, and best practices for engagement efforts. Drawing on the concept of participatory epistemic injustice, we argu...
| Publicado en: | Hastings Center Report Vol. 55; no. 5; pp. 18 - 29 |
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| Autores principales: | , |
| Formato: | Artículo |
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Wiley-Blackwell
Sep2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=188672274&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 188672274 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00930334 HCR jtl: Hastings Center Report issn: 00930334 maglogo: Y pubinfo: dt: Sep2025 vid: 55 iid: 5 pid: 480 pub: Wiley-Blackwell artinfo: ui: 188672274 10.1002/hast.70022 ppf: 18 ppct: 11 formats: tig: atl: Participant Engagement, Epistemic Injustice, and Early‐Phase Implanted Neural Device Research. aug: au: Levy, Lilyana Feinsinger, Ashley su: Health literacy Social justice Human research subjects Decision making Assistive technology Theory of knowledge Medical research Informed consent (Medical law) Patient participation Research ethics Patient selection Myoelectric prosthesis Stakeholder analysis sug: subj: Health literacy Social justice Human research subjects Decision making Assistive technology Theory of knowledge Medical research Informed consent (Medical law) Patient participation Research ethics Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Patient selection Myoelectric prosthesis Stakeholder analysis keyword: bioethics brain‐computer interfaces disability epistemic injustice neuroethics neurotechnology participant engagement bioethics brain‐computer interfaces disability epistemic injustice neuroethics neurotechnology participant engagement ab: In recent years, participant engagement initiatives in research on implanted neural devices have significantly increased. However, there remains little consensus on the motivations, goals, and best practices for engagement efforts. Drawing on the concept of participatory epistemic injustice, we argue that one core ethical motivation for engagement is epistemic in nature. Based on their subject positions, participants should be key knowledge contributors to implanted neurotech research. Therefore, we argue, participants experience participatory epistemic injustice when their insights do not result in changes to or otherwise influence research protocols, device development, and task design. We contend that engagement can resist this type of injustice only if it establishes robust methods not only to gather but also to actively incorporate participant knowledge into the research and development process. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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