Adapting Advance Care Planning Interventions for Hispanic Communities Across the U.S.
Context: Health inequities in Hispanic populations require community-engaged solutions. Engaging Hispanic communities in research related to advance care planning (ACP) is critical to inform the development and evaluation of culturally appropriate interventions. Objectives: To understand how to best...
| Publicado en: | American Journal of Hospice & Palliative Medicine Vol. 42; no. 12; pp. 1290 - 1298 |
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| Autores principales: | , , , , |
| Formato: | pictorial research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Dec2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=188720305&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 188720305 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10499091 1FR8 jtl: American Journal of Hospice & Palliative Medicine issn: 10499091 maglogo: Y pubinfo: dt: Dec2025 vid: 42 iid: 12 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 188720305 181794426 188720305 188720305 10.1177/10499091241306427 188720305 ppf: 1290 ppct: 8 formats: tig: atl: Adapting Advance Care Planning Interventions for Hispanic Communities Across the U.S. aug: au: Costigan, Heather J. VanDyke, Erika Calo, William A. Tucci, Amy Van Scoy, Lauren J. affil: Penn State College of Medicine, Hershey, PA, USA sug: subj: Advance Care Planning Hispanic Americans United States Spanish Language Program Implementation Implementation Science Human Funding Source United States Medical Practice, Evidence-Based Semi-Structured Interview Thematic Analysis Interpreter Services Health Inequities Culture Social Norms Communication Barriers Research Subjects Multilingualism Models, Theoretical Community Health Services Descriptive Statistics Qualitative Studies Data Analysis Software Interrater Reliability Nomenclature Trust Health Status Disparities Healthcare Disparities Advance Directives ab: Context: Health inequities in Hispanic populations require community-engaged solutions. Engaging Hispanic communities in research related to advance care planning (ACP) is critical to inform the development and evaluation of culturally appropriate interventions. Objectives: To understand how to best adapt and implement Spanish-language ACP interventions in Hispanic communities across the US. Methods: We apply the Framework for Reporting Adaptations and Modifications to Evidence-based Interventions (FRAME) to detail experiences during implementation of the national Project Talk Trial (PTT) that delivers two ACP interventions using a community-based delivery model. Semi-structured interviews with Hispanic community event hosts and research assistants (RAs) were conducted to explore challenges and solutions to implementation. Thematic analysis was applied to transcripts. Results: Three themes from the community hosts (n = 9) were: (1) certified translation professional services were inadequate to successfully adapt interventions for diverse Hispanic communities; (2) a lack of Spanish-speaking RAs undermined the intention to address health inequities in the research; and (3) cultural norms, such as RSVP systems, differ in Hispanic populations. Themes from the RA interviews (n = 7) include: (1) discomfort with being unable to communicate appropriately with the research participants; and (2) improved connection and event flow when bilingual RAs attended events. Conclusion: Our work highlights the value of a strong community-based delivery model, attention to local dialects and cultural nuances, the need for Spanish-speaking workforce and for balancing fidelity across national sites with adaptability when conducting rigorous research. Trial registered: The trial titled "Engaging underserved communities in end-of-life conversations: a cluster, randomized controlled trial" is registered at clinicaltrials.gov [NCT04612738]. pubtype: Academic Journal doctype: pictorial research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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