Patient voices to enhance concussion research participation: an exploratory qualitative study.
Purpose: There are unique characteristics of vulnerability among adult patients who experience a concussion and have persistent symptoms suggesting the need to tailor recruitment and retention strategies for this population. We aimed to obtain perspectives from post-concussion patients regarding fac...
| Publicado en: | Brain Injury Vol. 39; no. 13; pp. 1119 - 1132 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Taylor & Francis Ltd
Nov2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=188856291&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 188856291 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02699052 B6W jtl: Brain Injury issn: 02699052 maglogo: Y pubinfo: dt: Nov2025 vid: 39 iid: 13 pid: 377 pub: Taylor & Francis Ltd place: Philadelphia, Pennsylvania artinfo: ui: 188856291 187018651 188856291 188856291 10.1080/02699052.2025.2531984 188856291 ppf: 1119 ppct: 13 formats: tig: atl: Patient voices to enhance concussion research participation: an exploratory qualitative study. aug: au: Hunt, Cindy Fereig, Maryam Diaz, Sarah McLellan, Elke Kenrick-Rochon, Shannon Baker, Andrew affil: Trauma and Neurosurgery Program, St. Michael's Hospital, Toronto, Ontario, Canada sug: subj: Brain Concussion Research, Medical Patient Participation Research Subject Recruitment Research Subject Retention Patient Attitudes Evaluation Human Male Female Adult Middle Age Aged Aged, 80 and Over Exploratory Research Qualitative Studies Purposive Sample Interviews Thematic Analysis Ontario Funding Source Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Male Female ab: Purpose: There are unique characteristics of vulnerability among adult patients who experience a concussion and have persistent symptoms suggesting the need to tailor recruitment and retention strategies for this population. We aimed to obtain perspectives from post-concussion patients regarding factors they value to encourage recruitment and support retention, thereby assisting research teams conducting studies on concussion. Methods: The authors used purposive, nonrandom sampling to identify potential research participants for this exploratory qualitative sub-study. Interview questions were designed using Appreciative Inquiry to gain patient-centered approaches to support recruitment and retention. Transcripts from telephone interviews were analyzed using reflexive thematic analysis. Results: We identified two main themes: 1) positive change and 2) participant-centered study design. Each main theme had three sub-themes to support recruitment and/or retention. Positive changes included a) meaningful study impact, b) personal contribution counts, and c) gain information, and reassurance. Participant-centered study design included a) convenience, b) accommodation, and c) feeling valued. Conclusions: Focused efforts in planning to recruit and retain vulnerable populations for research are paramount. Based on our exploratory findings from a limited sample, we offer patient-reported insights to reflect upon the ongoing learning process to optimize recruitment and retention in the field of concussion research. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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