Inclusion of Racially and Ethnically Diverse Samples in Cognitive Rehabilitation Research: An Ethnographic Study of Recruitment and Retention Practices.

To describe the recruitment and retention practices of brain injury rehabilitation researchers and factors affecting the inclusion of racially and ethnically diverse research participants. Ethnographic study using surveys and qualitative interviews. Virtual. Eleven investigators (N=11) who published...

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Publicado en:Archives of Physical Medicine & Rehabilitation Vol. 106; no. 11; pp. 1665 - 1672
Autores principales: Kersey, Jessica, Le, Christian, Evans, Emily, Ahonle, Zaccheus J., Garcia, Patricia, Lequerica, Anthony H., Kumar, Devina, Parrott, Devan
Formato: research Journal Article
Publicado: W B Saunders Nov2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Nov2025
      vid: 106
      iid: 11
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      pub: W B Saunders
      place: Philadelphia, Pennsylvania
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        10.1016/j.apmr.2025.03.043
        188877288
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        atl: Inclusion of Racially and Ethnically Diverse Samples in Cognitive Rehabilitation Research: An Ethnographic Study of Recruitment and Retention Practices.
      aug:
        au:
          Kersey, Jessica
          Le, Christian
          Evans, Emily
          Ahonle, Zaccheus J.
          Garcia, Patricia
          Lequerica, Anthony H.
          Kumar, Devina
          Parrott, Devan
        affil: Program in Occupational Therapy, Washington University School of Medicine, St Louis, MO
      sug:
        subj:
          Research Subject Recruitment
          Research Subject Retention
          Rehabilitation, Cognitive
          Research, Rehabilitation
          Race Factors
          Human
          Ethnographic Research
          Qualitative Studies
          Surveys
          Descriptive Statistics
          Thematic Analysis
          Organizational Policies
          Public Health Infrastructure
      ab: To describe the recruitment and retention practices of brain injury rehabilitation researchers and factors affecting the inclusion of racially and ethnically diverse research participants. Ethnographic study using surveys and qualitative interviews. Virtual. Eleven investigators (N=11) who published cognitive rehabilitation intervention studies. Not applicable. Participants completed a survey describing strategies that have shown promise for the recruitment and retention of diverse participants. They then completed a qualitative interview to describe their priorities, the perceived effectiveness of their practices, and the challenges to recruiting representative samples. Interviews were analyzed using thematic analysis. Investigators reported moderate confidence in their knowledge of promising recruitment strategies but low confidence in implementing those strategies. Qualitative themes were balancing competing recruitment and retention priorities, building relationships with participants and communities, and research infrastructure and policies. Key factors influencing recruitment and retention practices included research study and research team characteristics, institutional infrastructure and policies, local contextual factors, and national academic community infrastructure and norms. Brain injury rehabilitation research faces significant challenges in achieving representation of racially and ethnically diverse participants. Systemic changes are needed at the study, institutional, and national levels to support more equitable clinical trial enrollment and reduce health disparities for marginalized brain injury survivors.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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