Recruiting participants for palliative care research: A reflective discussion paper.
Background: This discussion paper provides a reflection on ethical aspects of participant recruitment experiences during one research (PhD) project in the Republic of Ireland (ROI). Using Gibbs' framework for reflection, this paper examines these experiences. The research (PhD) project that informed...
| Published in: | Nursing Ethics Vol. 32; no. 7; pp. 2091 - 2100 |
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| Main Authors: | , , , |
| Format: | tables/charts Journal Article |
| Published: |
Sage Publications Inc.
Nov2025
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| Online Access: | View this record in EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=188884219&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 188884219 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09697330 31K jtl: Nursing Ethics issn: 09697330 maglogo: Y pubinfo: dt: Nov2025 vid: 32 iid: 7 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 188884219 187013862 188884219 188884219 10.1177/09697330251356550 188884219 ppf: 2091 ppct: 9 formats: tig: atl: Recruiting participants for palliative care research: A reflective discussion paper. aug: au: McCarthy, Bríd Connolly, Michael Timmins, Fiona O'Connell, Neil affil: University College Dublin sug: subj: Caregivers Psychosocial Factors Caregiver Attitudes Terminally Ill Patients Research Subject Recruitment Ethical Issues Palliative Care Research, Medical Ethical Issues Research Ethics Ireland Reflection Discussion Ireland Conceptual Framework Interviews Home Environment Workload Gatekeeping Patient Attitudes ab: Background: This discussion paper provides a reflection on ethical aspects of participant recruitment experiences during one research (PhD) project in the Republic of Ireland (ROI). Using Gibbs' framework for reflection, this paper examines these experiences. The research (PhD) project that informed this reflection aimed to understand the experiences of family caregivers when caring for family members at the end of their life, through recorded interviews in the home, within the context of palliative care provision. Ethical approval had been granted for the main study; however, this paper does not draw on empirical data from the study. Aim: This discussion paper aims to provide a reflection on some challenges faced when recruiting family caregivers at end of life during the research (PhD) project. Methods: Gibbs' framework for reflection was used to reflect on experiences of recruitment of 10 family caregivers, whose relatives were receiving palliative care, and who were interviewed in their home environments. Findings: Our reflections revealed that the recruitment process was protracted and challenging. When attempting to recruit family caregivers for the stud y, recruitment extended over a longer period than originally planned. Our reflections suggest that while gatekeeper workload was an influencing factor, a concern arose that they may have applied their own additional and persona l ethical measures to determine participant suitability. Conclusion: More education and supportive collaboration with gatekeepers may be required to ensure that they develop a more comprehensive understanding of the gatekeeper role and are assured and informed of the ethical benchmarks that precede d their involvement. Enhanced understanding may highlight the benefits of families taking part in healthcare research. pubtype: Academic Journal doctype: tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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