CITIZEN SCIENCE AND SCIENTIFIC COMMUNICATION: WHAT, WHEN, WHERE AND HOW TO INFORM AND WHO SHOULD COMMUNICATE ABOUT LONG COVID.
Introduction: The lack of adequate health information, especially during crises such as COVID19, creates distrust and misinformation, which negatively impacts public health and medical care. Long COVID patients face scepticism, highlighting the urgency of improved communication and research to suppo...
| Publicado en: | Revista de Comunicación y Salud Vol. 15; pp. 1 - 31 |
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| Autores principales: | , |
| Formato: | Artículo |
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Instituto Internacional de Comunicacion y Salud
2025
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=lth&AN=188887389&site=ehost-live header: @attributes: shortDbName: lth uiTerm: 188887389 longDbName: MedicLatina uiTag: AN controlInfo: bkinfo: jinfo: jid: 21745323 FKHG jtl: Revista de Comunicación y Salud issn: 21745323 maglogo: N pubinfo: dt: 2025 vid: 15 pid: 82379 pub: Instituto Internacional de Comunicacion y Salud artinfo: ui: 188887389 10.35669/rcys.2025.15.e364 ppf: 1 ppct: 30 formats: fmt: @attributes: type: P size: 3.1MB tig: atl: CITIZEN SCIENCE AND SCIENTIFIC COMMUNICATION: WHAT, WHEN, WHERE AND HOW TO INFORM AND WHO SHOULD COMMUNICATE ABOUT LONG COVID. aug: au: García Carrizo, Jennifer Gertrudix, Manuel affil: Universidad Rey Juan Carlos. Spain. su: POST-acute COVID-19 syndrome SCIENTIFIC communication PUBLIC health MISINFORMATION PATIENT advocacy CITIZEN science HEALTH literacy COOPERATION sug: subj: POST-acute COVID-19 syndrome SCIENTIFIC communication PUBLIC health MISINFORMATION PATIENT advocacy CITIZEN science HEALTH literacy COOPERATION keyword: Citizen Science information Long COVID recommendations Scientific Communication ab: Introduction: The lack of adequate health information, especially during crises such as COVID19, creates distrust and misinformation, which negatively impacts public health and medical care. Long COVID patients face scepticism, highlighting the urgency of improved communication and research to support their recovery. Methodology: Structured interviews with 42 Long COVID patients, 10 healthcare professionals, and 11 health communication specialists to obtain a comprehensive picture of the situation and develop recommendations. Results: The need for institutional recognition of Long COVID is emphasized. The creation of official digital platforms and increased awareness among primary care physicians is suggested. The importance of collaboration between government bodies, associations, patient groups, and communication experts is emphasised to provide multidisciplinary and transparent information, considering the evolution of scientific research. Discussion: Improving the communication and recognition of Long COVID can reduce misinformation and distrust. Collaboration between actors is key to ensuring effective and accurate information dissemination. Scientific communication actions, such as conferences and reports, are significant steps to raise awareness among society and health professionals about Long COVID. Conclusions: It is crucial to optimize the dissemination of information about Long COVID via official digital platforms and increase medical awareness. Multidisciplinary collaboration and scientific communication activities are essential to support patients and improve public health. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: Y custom: Copyright of Revista de Comunicación y Salud is the property of Instituto Internacional de Comunicacion y Salud and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. item: Revista de Comunicación y Salud holder: Instituto Internacional de Comunicacion y Salud dt: @attributes: year: 2025 holdings: @attributes: islocal: N |
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