Partnering With Patients to Conduct High‐Quality Research – Where Have We Been and Where Are We Going?

The article discusses the 75th World Medical Association General Assembly's review of the Declaration of Helsinki, which emphasizes the necessity of patient involvement in all stages of medical research. Concurrently, the University of Michigan is developing the Patient Partners Academy (PPA) to fos...

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Publicado en:Health Expectations Vol. 28; no. 5; pp. 1 - 4
Autores principales: Whibley, Daniel, Merritt, Greg, Haymart, Megan, Piechowski, Patricia, Larkin, Knoll, Williams, David
Formato: editorial questions and answers Journal Article
Publicado: Wiley-Blackwell Oct2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Oct2025
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        atl: Partnering With Patients to Conduct High‐Quality Research – Where Have We Been and Where Are We Going?
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          Whibley, Daniel
          Merritt, Greg
          Haymart, Megan
          Piechowski, Patricia
          Larkin, Knoll
          Williams, David
        affil: Michigan Institute for Clinical and Health Research, University of Michigan, Ann Arbor
      sug:
        subj:
          Health Services Research Trends
          Quality of Care Research Trends
          Patient Participation Trends
          Researcher-Subject Relations
          Medical Organizations
          International Agencies
          Congresses and Conferences
          Professional-Patient Relations
          Research, Medical
          Collaboration
          Motivation
          Consent (Research)
          United Kingdom
      ab: The article discusses the 75th World Medical Association General Assembly's review of the Declaration of Helsinki, which emphasizes the necessity of patient involvement in all stages of medical research. Concurrently, the University of Michigan is developing the Patient Partners Academy (PPA) to foster collaborative partnerships between patients, caregivers, and academic researchers, supported by funding from the US National Institutes of Health. The PPA aims to create a curriculum that promotes co-creation of research, enhances patient confidence in participating in research processes, and addresses challenges such as tokenism and unclear roles for patient partners. Ultimately, the PPA seeks to transform patient-researcher collaborations into sustainable, meaningful partnerships that enhance the quality of clinical research.
      pubtype: Academic Journal
      doctype:
        editorial
        questions and answers
        Journal Article
      ougenre: Article
    language: English
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