Disclosing the Decision to Decline Breast Screening and/or Breast Cancer Treatment Due to Concerns About Overdiagnosis and Overtreatment.
Background or Context: Overdiagnosis and overtreatment have been acknowledged as harms of the NHS Breast Screening Programme (BSP) due to the uncertainty around if, or how, non‐invasive and invasive cancers identified through screening will progress. Importance is therefore placed on encouraging ind...
| Publicado en: | Health Expectations Vol. 28; no. 5; pp. 1 - 13 |
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| Autores principales: | , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
Oct2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=188926596&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 188926596 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 13696513 EVY jtl: Health Expectations issn: 13696513 maglogo: Y pubinfo: dt: Oct2025 vid: 28 iid: 5 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 188926596 188926596 188926596 10.1111/hex.70468 188926596 ppf: 1 ppct: 12 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Disclosing the Decision to Decline Breast Screening and/or Breast Cancer Treatment Due to Concerns About Overdiagnosis and Overtreatment. aug: au: Jeffers, Shavez Pilnick, Alison Armstrong, Natalie affil: Diabetes Research Centre, Leicester General Hospital, University of Leicester, Leicester, UK sug: subj: Women Psychosocial Factors Patient Attitudes Decision Making, Clinical Patient Compliance Cancer Screening Psychosocial Factors Breast Neoplasms Psychosocial Factors Breast Neoplasms Therapy Overdiagnosis Psychosocial Factors Overtreatment Psychosocial Factors Human United Kingdom Funding Source United Kingdom Female Middle Age Aged Aged, 80 and Over Descriptive Statistics Semi-Structured Interview Interview Guides Thematic Analysis Data Analysis Software Checklists Family Support Interpersonal Relations Truth Disclosure Middle Aged: 45-64 years Aged: 65+ years Aged, 80 & over Female ab: Background or Context: Overdiagnosis and overtreatment have been acknowledged as harms of the NHS Breast Screening Programme (BSP) due to the uncertainty around if, or how, non‐invasive and invasive cancers identified through screening will progress. Importance is therefore placed on encouraging individuals to make an informed choice about whether to participate in screening and any follow‐on interventions. Even though all screening programmes generally state explicitly that individuals should have the freedom to choose, research into wider cancer screening programmes shows how disclosing a decision to decline may be regarded as problematic by others. However, literature exploring experiences of disclosing the decision to decline breast screening or subsequent interventions within the UK context is limited. Objective: We explore women's experiences of disclosing the decision to decline screening, treatment and/or other recommended medical interventions after being invited to the NHS BSP, to understand how making the decision to decline breast screening and/or breast cancer treatment was received by others. Design: Semi‐structured interviews. Setting and Participants: Twenty women who had made the decision to decline screening, treatment and/or other interventions recommended after being invited to the NHS BSP were recruited through social media, online forums and word of mouth. Results: Some of the women discussed responses from their family and friends when disclosing their decision to decline and explained how they received supportive responses from some and negative responses from others. Difficulties in disclosing their intention to decline healthcare professionals were also discussed by some of the women. Receiving unsupportive responses meant that some of the women felt hesitant about how and where they disclosed their decision. Conclusions: To varying degrees, the findings revealed the burden of having to explain and account for the decision to decline and manage the potential reaction to this as not acceptable. Patient or Public Contribution: Before recruitment and data collection commenced, we sought feedback from an individual with lived experience in declining breast cancer screening and treatment due to concerns about overdiagnosis and overtreatment. This individual provided valuable insights on the study design and the most effective methods for recruiting participants from the targeted population. Additionally, a topic guide was developed for the semi‐structured interviews, which was then tested through a pilot interview with the same individual. The feedback from this pilot interview was instrumental in refining and improving the topic guide. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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