Implementing Integrative Psychosocial Care for Siblings and Caregivers of Youth with Cancer.
Highlights: What are the main findings? Integrative care for siblings and caregivers of youth with cancer can be developed and implemented with interdisciplinary collaboration. Short-term funding can be leveraged to support development and implementation of integrative care for siblings and caregive...
| Publicado en: | Children Vol. 12; no. 10; pp. 1335 - 1348 |
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| Autores principales: | , , , |
| Formato: | review tables/charts Journal Article |
| Publicado: |
MDPI
Oct2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=188995189&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 188995189 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 22279067 LW6K jtl: Children issn: 22279067 maglogo: N pubinfo: dt: Oct2025 vid: 12 iid: 10 pid: 97109 pub: MDPI artinfo: ui: 188995189 188995189 188995189 10.3390/children12101335 188995189 ppf: 1335 ppct: 13 formats: tig: atl: Implementing Integrative Psychosocial Care for Siblings and Caregivers of Youth with Cancer. aug: au: Patten, Joanna Haas, Helena Hillinga Coyle, Riley Knott, David affil: Seattle Children's Hospital, Seattle, WA 98105, USA sug: subj: Cancer Patients Psychosocial Factors Siblings Psychosocial Factors Caregivers Psychosocial Factors Psychosocial Intervention Evaluation Multidisciplinary Care Team Integrative Medicine Implementation Science Pediatric Care Oncologic Care Stress, Psychological Stress Management Coping Health Services Accessibility Financial Support Family Relations Feedback Health Resource Utilization Geographic Factors Communication Quality of Health Care Health Care Delivery Mindfulness Emotions Social Isolation Support, Psychosocial Quality of Life In Infancy and Childhood Art Therapy Adolescence Child Adolescent: 13-18 years Child: 6-12 years ab: Highlights: What are the main findings? Integrative care for siblings and caregivers of youth with cancer can be developed and implemented with interdisciplinary collaboration. Short-term funding can be leveraged to support development and implementation of integrative care for siblings and caregivers of youth with cancer. What is the implication of the main finding? Demonstrating utilization of and positive family feedback for integrative psychosocial care for siblings and caregivers of youth with cancer may support sustained operational funding of services for these important yet often underserved family members. Background/Objectives: Psychosocial care for siblings and caregivers of youth with cancer (SCYC) is a critical yet under-implemented component of comprehensive pediatric oncology care, as outlined by the Standards for Psychosocial Care for Children with Cancer and Their Families. Despite evidence supporting psychosocial interventions, such as integrative care interventions, as effective for stress mitigation and coping, barriers to implementation include revenue-generating funding models and siloed psychosocial disciplines, which hinder accessibility for adult caregivers within pediatric institutions and geographically dispersed families. This manuscript describes the relevant extant literature as well as a model for leveraging short-term funding opportunities and interdisciplinary collaboration to develop integrative care programs for these underserved groups. Methods: Philanthropic funding supported part-time child life specialist and creative arts therapist deployment to develop and implement integrative virtual group programs, as well as interdisciplinary integrative programs, to serve SCYC. Attendance, engagement, and qualitative feedback were used for program iteration and supported the transition to institutional funding. Results: Integrative programs provided 331 caregiver and sibling encounters during the two-year pilot. Qualitative feedback from caregivers highlighted the value of virtual services in reaching geographically dispersed families and addressing feelings of isolation among SCYC at the universal and targeted levels of care. Communication about these key outcomes led to operational funding and sustained integrated care programs. Conclusions: This manuscript illustrates a successful model of leveraging philanthropic funding to support the development of integrative care programs to serve SCYC. Future research should focus on refining the clinical and financial feasibility of such models and assessing their impact on family well-being. pubtype: Academic Journal doctype: review tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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