Navigating the "rabbit hole": An embodied and affective account of patienthood and chronic illness.
Feminist scholars studying chronic illness have drawn on the notion of personhood to develop the concept of patienthood, highlighting the socially and culturally constructed nature of this subjectivity. To further conceptualizations of patienthood, I conducted arts-based qualitative research, asking...
| Publicado en: | Feminism & Psychology Vol. 35; no. 4; pp. 526 - 555 |
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| Autor principal: | |
| Formato: | pictorial research Journal Article |
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Sage Publications Inc.
Nov2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=189024139&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 189024139 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 09593535 0S4 jtl: Feminism & Psychology issn: 09593535 maglogo: Y pubinfo: dt: Nov2025 vid: 35 iid: 4 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 189024139 187514730 189024139 189024139 10.1177/09593535251361545 189024139 ppf: 526 ppct: 29 formats: tig: atl: Navigating the "rabbit hole": An embodied and affective account of patienthood and chronic illness. aug: au: Sebring, Jennifer C. H. affil: University of Manitoba, Canada sug: subj: Chronic Disease Psychosocial Factors Women Psychosocial Factors Gender-Nonconforming Persons Psychosocial Factors Patient Attitudes Attitude to Illness Human Female Nonbinary Persons Adult Canada Qualitative Studies Thematic Analysis Interviews Uncertainty Stress, Psychological Adult: 19-44 years Female ab: Feminist scholars studying chronic illness have drawn on the notion of personhood to develop the concept of patienthood, highlighting the socially and culturally constructed nature of this subjectivity. To further conceptualizations of patienthood, I conducted arts-based qualitative research, asking: how do young women and gender-diverse adults living with chronic illnesses understand and experience patienthood? Multimedia collage workshops with 10 women and nonbinary people living with chronic illnesses invited participants to create "portraits of patienthood." My analysis of the artwork continues the interdisciplinary work of conceptualizing patienthood by reading the art through critical disability scholar Margaret Price's notion of "crip spacetime." Together, Price's theory and participant accounts illuminate the deeply relational, embodied, and affective dimensions of patienthood as shaped by the entanglement of social, material, cultural, and psychological factors. This study identifies the metaphor of the "rabbit hole" as an apt description of the complexities inherent in navigating the fluctuating nature of chronic illness amid a lack of systemic support. pubtype: Academic Journal doctype: pictorial research Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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