Forming Genuine Bonds: HIV Research Retention Strategies for Cisgender Women Vulnerable to HIV Acquisition.
Cisgender women face significant HIV risks in the United States yet retention in prevention research is challenging. The same factors that increase HIV vulnerability also create barriers to research participation. This qualitative study explored multilevel barriers and facilitators to retaining cisg...
| Publicado en: | AIDS Patient Care & STDs Vol. 39; no. 11; pp. 473 - 485 |
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| Autores principales: | , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Mary Ann Liebert, Inc.
Nov2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=189287638&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 189287638 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 10872914 33C jtl: AIDS Patient Care & STDs issn: 10872914 maglogo: N pubinfo: dt: Nov2025 vid: 39 iid: 11 pid: 1365 pub: Mary Ann Liebert, Inc. place: New Rochelle, New York artinfo: ui: 189287638 189287638 189287638 10.1177/10872914251379045 189287638 ppf: 473 ppct: 12 formats: tig: atl: Forming Genuine Bonds: HIV Research Retention Strategies for Cisgender Women Vulnerable to HIV Acquisition. aug: au: McDonald, Victoria W. Corcoran, Jessica Hahn, Alexandria L. Ott, Corilyn Kempf, Mirjam-Colette Schnall, Rebecca Johnson, Amy K. affil: School of Nursing, The University of Alabama at Birmingham, Birmingham, Alabama, USA. sug: subj: HIV Infections Psychosocial Factors HIV Infections Prevention and Control Patient Selection Research Subject Retention Research Subjects Psychosocial Factors Research, Medical United States Cisgender Persons Psychosocial Factors Women's Health Special Populations Psychosocial Factors Seroconversion Human Male Female Adolescence Adult Middle Age Qualitative Studies Funding Source Research Subject Recruitment HIV-Positive Persons Psychosocial Factors Convenience Sample Content Analysis Substance Abuse Complications Interpersonal Relations Time Factors Research Methodology Frustration Patient Safety Intimate Partner Violence Complications Housing Instability Built Environment Financial Support Health Education Support, Psychosocial Clinical Effectiveness Medical Mistrust Communication Anxiety Semi-Structured Interview Survey Research Confusion Accountability Motivation Privacy and Confidentiality Mental Health Incarceration Psychosocial Factors United States Stakeholder Participation Patient Attitudes Evaluation Prospective Studies Sex Education Alcohol Abuse Complications Sexually Transmitted Diseases Complications Drugs, Prescription Therapeutic Use Sexuality Age Factors Sex Factors Race Factors Ethnic Groups Educational Status Economic Status Insurance Coverage Descriptive Statistics Data Analysis Software Adolescent: 13-18 years Adult: 19-44 years Middle Aged: 45-64 years Male Female ab: Cisgender women face significant HIV risks in the United States yet retention in prevention research is challenging. The same factors that increase HIV vulnerability also create barriers to research participation. This qualitative study explored multilevel barriers and facilitators to retaining cisgender women with increased HIV prevention needs in research using the social ecological model (SEM). Semi-structured interviews were conducted from August 2023 to February 2024 with 114 participants across three groups: HIV-negative cisgender women with increased HIV prevention needs (n = 34), cisgender women living with HIV (n = 40), and HIV prevention/treatment stakeholders (n = 40). Participants were recruited nationally through convenience sampling via social media and organizations. Directed content analysis was used to identify retention factors across individual, environmental, intervention, and structural levels. Barriers included substance use affecting contact maintenance, concerns about study time commitments, frustrations with unclear study procedures, poor staff rapport, safety concerns around intimate partner violence, historical research mistrust, and systemic vulnerabilities like housing instability. Facilitators included creating affirming environments that fostered purpose, flexible scheduling with incremental compensation, clear study expectations and health education/support, authentic staff relationships, discrete communication methods, transparent study procedures and approaches, virtual visit options, and availability of multiple contact methods. Findings corroborated a key paradox: those most vulnerable to HIV acquisition may be least likely to complete longitudinal studies due to structural barriers. Successful retention requires flexible approaches that address barriers at all SEM levels. These findings provide strategies for researchers to improve retention among cisgender women with increased HIV prevention needs, strengthening research representativeness and effectiveness. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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