Participation of ethnic minorities in Parkinson's research: challenges and needs. A qualitative study.
Objective To explore barriers to participation in Parkinson's disease (PD) research trials amongst ethnic minority (EM) individuals in the UK and to identify potential strategies to improve inclusivity. Design A qualitative study using semi-structured interviews and thematic analysis. Setting Partic...
| Publicado en: | Age & Ageing Vol. 54; no. 10; pp. 1 - 11 |
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| Autores principales: | , , , |
| Formato: | Artículo |
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Oxford University Press / USA
Oct2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=189289170&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 189289170 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00020729 AGA jtl: Age & Ageing issn: 00020729 maglogo: N pubinfo: dt: Oct2025 vid: 54 iid: 10 pid: 622 pub: Oxford University Press / USA artinfo: ui: 189289170 10.1093/ageing/afaf296 ppf: 1 ppct: 10 formats: tig: atl: Participation of ethnic minorities in Parkinson's research: challenges and needs. A qualitative study. aug: au: Ramadhan, Mouhammed Schrag, Anette Tufail, Mahil Stott, Joshua affil: Department of Clinical and Movement Neurosciences, University College London, London, WC1E 6BT, UK Department of Clinical, Educational and Health Psychology, University College London, London, UK su: United Kingdom Ethnic groups Self-evaluation Cultural awareness Qualitative research Clinical trials Human research subjects Interviewing Medical research Trust Arabs Minorities Psychosocial factors Patient participation Cultural pluralism Patient selection Diversity & inclusion policies Parkinson's disease Descriptive statistics Judgment sampling Thematic analysis South Asians Black British Research methodology Comparative studies Data analysis software Middle Easterners sug: subj: Ethnic groups Self-evaluation Cultural awareness Qualitative research Clinical trials Human research subjects Interviewing Medical research Trust Arabs Minorities Psychosocial factors Patient participation Cultural pluralism United Kingdom Research and Development in the Physical, Engineering, and Life Sciences (except Biotechnology) Patient selection Diversity & inclusion policies Parkinson's disease Descriptive statistics Judgment sampling Thematic analysis South Asians Black British Research methodology Comparative studies Data analysis software Middle Easterners keyword: barriers ethnic minority improve minority groups older people parkinson disease participation qualitative research barriers ethnic minority improve minority groups older people parkinson disease participation qualitative research ab: Objective To explore barriers to participation in Parkinson's disease (PD) research trials amongst ethnic minority (EM) individuals in the UK and to identify potential strategies to improve inclusivity. Design A qualitative study using semi-structured interviews and thematic analysis. Setting Participants were recruited primarily through community outreach in the UK. Participants Twenty-one individuals diagnosed with PD, self-identifying as belonging to EM groups, participated in the study. The sample included individuals from South Asian, Black African and Middle Eastern backgrounds. Results Five themes were identified: (i) Lack of Awareness of Research Opportunities; (ii) Mistrust and Misconceptions about Research, where fears and misunderstandings about research processes contributed to hesitancy; (iii) Understanding the importance and scope of research, some participants viewed research only as a means to find a cure, while others emphasised the need for studies on non-motor symptoms; (iv) Practical and Parkinson's-related barriers, including fatigue, travel difficulties, financial constraints and language barriers; and (v) Facilitators to Participation many preferring flexible and remote participation options. Conclusions This study found addressing barriers to participation requires tailored engagement strategies, transparent communication, diverse representation in research teams and practical support measures. Emphasising the importance of research and its potential to improve treatments and outcomes is essential to improving inclusivity and accessibility in PD research. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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