Experiences and concerns of patients on enteral nutrition, based on their testimonies on public internet forums.

This qualitative study aims to provide a sociological assessment of the spontaneous and lived experiences of patients on enteral nutrition, as expressed through testimonies on public internet forums (general health forums and specialized health forums). By analysing 5715 testimonies from 2873 author...

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Publicado en:Clinical Nutrition Vol. 55; pp. 141 - 152
Autores principales: Sainte-Claire Deville, G., Seignez-Dartois, B., Buhl, Danel
Formato: research Journal Article
Publicado: Elsevier B.V. Dec2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Dec2025
      vid: 55
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      pub: Elsevier B.V.
      place: New York, New York
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        10.1016/j.clnu.2025.10.004
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        atl: Experiences and concerns of patients on enteral nutrition, based on their testimonies on public internet forums.
      aug:
        au:
          Sainte-Claire Deville, G.
          Seignez-Dartois, B.
          Buhl, Danel
        affil: Focus Patient, Rueil-Malmaison, France
      sug:
        subj:
          Enteral Nutrition Methods
          Enteral Nutrition Psychosocial Factors
          Internet
          Patient Attitudes Evaluation
          Human
          Qualitative Studies
          Comparative Studies
          Descriptive Statistics
          Nasoenteral Tubes
          Jejunostomy Tubes
          Gastrostomy Tubes
          Patient Satisfaction
          Activities of Daily Living
          Quality of Life
          Sociological Theory
      ab: This qualitative study aims to provide a sociological assessment of the spontaneous and lived experiences of patients on enteral nutrition, as expressed through testimonies on public internet forums (general health forums and specialized health forums). By analysing 5715 testimonies from 2873 authors, we aimed to capture an unfiltered view of this treatment, free from the biases often introduced by clinical or medical assessments. The findings highlight different experiences and perceptions of enteral nutrition depending on whether the patient has a nasogastric/nasojejunal tube (NGT/NJT) or a gastrostomy/jejunostomy tube (GT/JT). If patients trust enteral nutrition and acknowledge its positive outcomes, their experience is more positive with gastrostomy/jejunostomy tube. This approach offers valuable insights into the impact of the enteral nutrition on the patients' daily life and allows all healthcare stakeholders to better consider the reality of their experiences.
      pubtype: Academic Journal
      doctype:
        research
        Journal Article
      ougenre: Article
    language: English
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