Participant permanence: Exploring and enhancing experiences of research involvement in UK adults with vision impairment through an Online Participant Engagement Network (OPEN).
For individuals with vision impairment (VI), there can be physical and technical barriers to participating in research and accessing research outputs. As a result, researchers often target smaller VI samples and individuals with VI are left under-involved and underrepresented in the VI research disc...
| Publicado en: | British Journal of Visual Impairment Vol. 44; no. 1; pp. 28 - 44 |
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| Autores principales: | , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Sage Publications Inc.
Jan2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=190221993&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 190221993 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 02646196 2WMR jtl: British Journal of Visual Impairment issn: 02646196 maglogo: Y pubinfo: dt: Jan2026 vid: 44 iid: 1 pid: 344 pub: Sage Publications Inc. place: Thousand Oaks, California artinfo: ui: 190221993 181600496 190221993 190221993 10.1177/02646196241298203 190221993 ppf: 28 ppct: 16 formats: tig: atl: Participant permanence: Exploring and enhancing experiences of research involvement in UK adults with vision impairment through an Online Participant Engagement Network (OPEN). aug: au: Roberts-Mills, Wylde M C Richardson, Mike Scheller, Meike Tavoulari, Aikaterini Proulx, Michael J de Sousa, Alexandra A affil: University of Plymouth, UK sug: subj: Research Subjects In Adulthood Patient Attitudes Evaluation Research, Medical Vision Disorders In Adulthood Patient Participation Human Funding Source United Kingdom Sample Size Qualitative Studies Semi-Structured Interview Focus Groups Motivation Thematic Analysis Videorecording Data Analysis Software Communication Research Subject Recruitment Research Subject Retention Interrater Reliability Audiorecording Adult Adult: 19-44 years ab: For individuals with vision impairment (VI), there can be physical and technical barriers to participating in research and accessing research outputs. As a result, researchers often target smaller VI samples and individuals with VI are left under-involved and underrepresented in the VI research discourse. This study aimed to evaluate the accessibility and utility of the Online Participant Engagement Network for Vision Impairment Research (OPEN VI Research) and explore the broader experiences of research involvement in individuals with VI to develop guidelines for researchers studying this area. Qualitative data were collected through a semi-structured focus group with seven adults with VI, and analysed using a dual inductive reflexive thematic analysis approach. Three overarching meta-themes emerged through the analysis: 'access', 'participant permanence' and 'motivation'. It was identified that preferences for being reached to take part in research and optimisation for accessible web-design differed based on individual needs associated with varying levels of VI. The importance of researchers recognising participants with VI as active contributors, before, during and after participation, was also outlined. In addition, despite some participants expressing negative experiences of researchers failing to follow-up post-participation, it was found that focus group members remained highly motivated to continue to take part in research. To address these findings, guidelines for researchers were developed based on participant suggestions and discussed in relation to relevant literature. This study fills the gap in the literature on individuals with VI's views and experiences of research involvement and the suggested guidelines have the potential to improve the accessibility and effectiveness of the practice of researchers of VI. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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