Research Participation Among American Indian and Alaskan Native Individuals Living With Parkinson's Disease.
Background: There is a notable gap in racial and ethnic representation in Parkinson's disease (PD) research, particularly among American Indian and Alaska Native (AIAN) populations, despite a higher prevalence of PD in these groups. This study investigated research participation among AIAN individua...
| Publicado en: | Parkinson's Disease (20420080) Vol. 2025; pp. 1 - 8 |
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| Autores principales: | , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Wiley-Blackwell
12/28/2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=190548421&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 190548421 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 20908083 B6DS jtl: Parkinson's Disease (20420080) issn: 20908083 maglogo: N pubinfo: dt: 12/28/2025 vid: 2025 pid: 480 pub: Wiley-Blackwell place: Malden, Massachusetts artinfo: ui: 190548421 190548421 190548421 10.1155/padi/3207928 190548421 ppf: 1 ppct: 7 formats: tig: atl: Research Participation Among American Indian and Alaskan Native Individuals Living With Parkinson's Disease. aug: au: Jones, Jacob D. Valenzuela, Yenny Pacheco, Melissa Nelson, Lonnie Witt, Karsten affil: Department of Psychology,, California State University,, San Bernardino, California, USA, calstate.edu sug: subj: Parkinson Disease Alaska Natives Psychosocial Factors Native Americans Research Subjects Psychosocial Factors Patient Participation Evaluation Ethnic Groups Psychosocial Factors Human Funding Source Male Female Aged Aged, 80 and Over Cross Sectional Studies Parkinson Disease Epidemiology United States Prevalence Self Report Genetic Screening Health Services Accessibility Healthcare Disparities Trust Minority Groups Attitude to Health Questionnaires Rural Health Services Health Knowledge Descriptive Statistics Comparative Studies Pearson's Correlation Coefficient Chi Square Test T-Tests Mann-Whitney U Test Scales Aged: 65+ years Aged, 80 & over Male Female ab: Background: There is a notable gap in racial and ethnic representation in Parkinson's disease (PD) research, particularly among American Indian and Alaska Native (AIAN) populations, despite a higher prevalence of PD in these groups. This study investigated research participation among AIAN individuals in terms of perceived access to research opportunities, willingness to participate, and potential concerns about participation. Methods: Data were obtained from the online Fox Insight (FI) study. A total sample of 4412 individuals who self‐reported their race as White (n = 4363) or AIAN (n = 49) were selected. The Attitudes and Beliefs Regarding Research and Genetic Testing for PD survey was administered to assess participants' attitudes and knowledge about the research process, opportunities, and preferences. Results: A significantly smaller proportion of AIAN individuals (34.7%) reported concurrent or past participation in PD research compared with White non‐AIAN participants (52.9%). Despite this lower participation rate and limited knowledge of research opportunities, a large majority of AIAN individuals (89.8%) expressed a willingness to participate in research. Additionally, both AIAN and White non‐AIAN participants reported similar rates of concerns about research participation. Among AIAN individuals, the most common barriers were distance from research site, transportation, and time commitments. Conclusion: These findings highlight that low research participation among AIAN individuals may be more associated with low engagement from the research community rather than unwillingness or relatively greater research concerns. Building stronger partnerships with tribal communities and involving community leaders to build trust may improve research representation among AIAN populations. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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