Recruitment of African American Adults With Multiple Sclerosis Into Randomized Controlled Trials of Exercise Training: Lessons Learned From Project TEAAMS.
BACKGROUND: Exercise is effective for managing symptoms and improving quality of life among people with multiple sclerosis (MS). However, African Americans are underrepresented in MS exercise trials, partly due to limited recruitment resources and avenues tailored to this demographic. This paper des...
| Publicado en: | International Journal of MS Care Vol. 27; no. Q4; pp. 337 - 346 |
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| Autores principales: | , , , , , , , |
| Formato: | pictorial tables/charts Journal Article |
| Publicado: |
Consortium of Multiple Sclerosis Centers
Oct-Dec2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=190640082&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 190640082 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 15372073 1FUA jtl: International Journal of MS Care issn: 15372073 maglogo: N pubinfo: dt: Oct-Dec2025 vid: 27 iid: Q4 pid: 66082 pub: Consortium of Multiple Sclerosis Centers place: Hackensack, New Jersey artinfo: ui: 190640082 190640082 190640082 10.7224/1537-2073.2024-046 190640082 ppf: 337 ppct: 9 formats: tig: atl: Recruitment of African American Adults With Multiple Sclerosis Into Randomized Controlled Trials of Exercise Training: Lessons Learned From Project TEAAMS. aug: au: Neal, Whitney N. Gomez, Denise Flores, Victoria Flores, Edson Williams, Mitzi J. Kinnett-Hopkins, Dominique Pekmezi, Dorothy Motl, Robert W. affil: Department of Health Behavior, The University of Alabama at Birmingham, Birmingham, AL sug: subj: Multiple Sclerosis Rehabilitation Randomized Controlled Trials Aerobic Exercises Research Subject Recruitment Methods African Americans Patient Selection Telerehabilitation Culture Resistance Training Program Implementation Program Evaluation Adult United States Anniversaries and Special Events Recreation Communities Health Facilities Schools World Wide Web Information Resources Videorecording Social Media Support Groups Patient Participation Minority Groups Control Group Multiple Sclerosis Organizations Eligibility Determination Power Analysis Diversity, Equity, Inclusion Research Personnel Research Instruments Data Analysis Software Adult: 19-44 years ab: BACKGROUND: Exercise is effective for managing symptoms and improving quality of life among people with multiple sclerosis (MS). However, African Americans are underrepresented in MS exercise trials, partly due to limited recruitment resources and avenues tailored to this demographic. This paper describes participant outreach and recruitment strategies for an ongoing, remotely delivered, culturally tailored exercise training program for African American individuals with MS. METHODS: Initially, a passive, indirect approach in the form of virtual outreach was employed, distributing study information through MS organizations, local experts, community leaders, patient representatives, and others in the southern United States. The effectiveness of these outreach and recruitment strategies in screening and enrolling was assessed using study coordinator and participant data. RESULTS: Over 15 months, the outreach methods successfully recruited 80 African Americans with MS into the clinical trial. Following a delayed start and slower initial recruitment, active outreach strategies were incorporated (eg, in-person engagements at local MS events, recreation and community centers, health care facilities, and schools). Additional tactics included study website enhancements, an informational video, email templates, and updates to the study flyer. Most participants (64.9%) were recruited through MS organizations, with virtual platforms (ie, websites, social media; 14.3%) and support groups (9.1%) also contributing to recruitment success. CONCLUSIONS: This study demonstrates the effectiveness of a multipronged, experience-informed approach for successfully enrolling African Americans with MS into clinical trials. While MS organizations proved pivotal for recruiting and enrolling African Americans with MS, leveraging diverse recruitment outlets highlighted the importance of multifaceted strategies for engaging participants from minority backgrounds in research. pubtype: Academic Journal doctype: pictorial tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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