Balancing Parental and Child Interests in Research Subject Compensation.

Both minors enrolled in human subject research and their parents often receive compensation for the former's participation. While considerable literature addresses the ethics of such compensation, the existing literature does not yet consider the challenge of minors and parents who may have divergen...

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Publicado en:Journal of Bioethical Inquiry Vol. 22; no. 4; pp. 801 - 810
Autor principal: Appel, J. M.
Formato: Journal Article
Publicado: Springer Nature Dec2025
Acceso en línea:Ver este registro en EBSCOhost
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      dt: Dec2025
      vid: 22
      iid: 4
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      pub: Springer Nature
      place: New York, New York
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        190750814
        185985252
        10.1007/s11673-025-10436-5
        190750814
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        atl: Balancing Parental and Child Interests in Research Subject Compensation.
      aug:
        au: Appel, J. M.
        affil: https://ror.org/04a9tmd77 Icahn School of Medicine at Mount Sinai, Mount Sinai Health System, 140 Claremont Ave #3D, 10027, New York, NY, United States
      sug:
        subj:
          Research Subjects Economics
          Consent (Research)
          Parents
          Researcher-Subject Relations In Infancy and Childhood
          Research Ethics Evaluation
          Legislation Evaluation
          Institutional Review
          Ethical Dilemmas
          Research Support Ethical Issues
          Pediatrics
          Research, Medical
          Child
          Government Regulations
          Morals
          Patient Rights
          Child Safety
          Patient Safety
          Child: 6-12 years
      ab: Both minors enrolled in human subject research and their parents often receive compensation for the former's participation. While considerable literature addresses the ethics of such compensation, the existing literature does not yet consider the challenge of minors and parents who may have divergent views regarding how such compensation should be expended. Since parents generally have broad legal authority over both monetary and in-kind compensation received by their children, ensuring that compensation earmarked for minor subjects are actually expended in accordance with the subjects' interests may prove challenging. This paper assesses the existing legal and ethical landscape in this area and proposes several potential mechanisms through which researchers and IRBs might address this largely overlooked dilemma.
      pubtype: Academic Journal
      doctype: Journal Article
      ougenre: Article
    language: English
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