Informal Caregivers' Experiences of Decision-Making in End-of-Life Care for People with Dementia: A Qualitative Meta-synthesis.
Purpose: This review synthesized qualitative evidence on informal caregivers' experiences in decision-making about end-of-life care for people with dementia. Methods: A meta-aggregation approach based on the Joanna Briggs Institute methodology was applied. Literature searches were conducted across 1...
| Publicado en: | Journal of Korean Academy of Psychiatric & Mental Health Nursing (JKPMHN) Vol. 34; no. 4; pp. 402 - 425 |
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| Autores principales: | , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
Korean Academy of Psychiatric & Mental Health Nursing
Dec2025
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=190960791&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 190960791 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 12258482 HC6L jtl: Journal of Korean Academy of Psychiatric & Mental Health Nursing (JKPMHN) issn: 12258482 maglogo: N pubinfo: dt: Dec2025 vid: 34 iid: 4 pid: 93726 pub: Korean Academy of Psychiatric & Mental Health Nursing artinfo: ui: 190960791 190960791 190960791 10.12934/jkpmhn.2025.34.4.402 190960791 ppf: 402 ppct: 23 formats: fmt: – @attributes: type: T – @attributes: type: P tig: atl: Informal Caregivers' Experiences of Decision-Making in End-of-Life Care for People with Dementia: A Qualitative Meta-synthesis. aug: au: Lee, Heashoon Park, Jaewon affil: Professor, Department of Nursing, Hannam University, Daejeon, Korea sug: subj: Caregiver Attitudes Evaluation Caregivers Psychosocial Factors Decision Making, Family Terminal Care Dementia Therapy Patient-Family Relations Human Meta Synthesis PubMed CINAHL Database Descriptive Statistics Needs Assessment Health Services Accessibility Dementia Patients ab: Purpose: This review synthesized qualitative evidence on informal caregivers' experiences in decision-making about end-of-life care for people with dementia. Methods: A meta-aggregation approach based on the Joanna Briggs Institute methodology was applied. Literature searches were conducted across 11 databases including PubMed, as well as ProQuest Dissertations & Theses Global, OpenGrey, and citation searches for grey literature. The search and study selection were carried out between February 13 and June 28, 2025. Results: Twenty-one qualitative studies involving 502 informal caregivers were included. Three synthesized findings emerged from nine categories: (1) formation and readiness in end-of-life care decision-making, including role assignment, prior discussions, and preparedness; (2) factors and emotional impacts, encompassing barriers, facilitators, decision-making bases, and emotional consequences; and (3) caregivers' needs in end-of-life care decision-making, reflecting their desire to make appropriate decisions for people with dementia and the requirements to do so. Conclusion: This review offers a comprehensive understanding of caregivers' experiences and provides practical insights for healthcare professionals. The findings support the development of guidance to assist caregivers, reduce decision-making burden and emotional distress, and promote more meaningful and satisfactory end-of-life care decisions. pubtype: Academic Journal doctype: research tables/charts meta synthesis Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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