Fostering cultural humility in perinatal palliative care. An interpretative qualitative study from the United Kingdom.
Research shows marked disparities in perinatal deaths across population groups in the UK. The aim of this study was to understand how perinatal palliative care is experienced by parents from culturally-diverse backgrounds and to understand the challenges facing the health and social care professiona...
| Publicado en: | Mortality Vol. 31; no. 1; pp. 55 - 76 |
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| Autores principales: | , |
| Formato: | Artículo |
| Publicado: |
Taylor & Francis Ltd
Feb2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=191375309&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 191375309 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 13576275 MIY jtl: Mortality issn: 13576275 maglogo: Y pubinfo: dt: Feb2026 vid: 31 iid: 1 pid: 377 pub: Taylor & Francis Ltd artinfo: ui: 191375309 10.1080/13576275.2025.2483754 ppf: 55 ppct: 21 formats: fmt: – @attributes: type: T db: hlh ui: 191375309 – @attributes: type: P db: hlh ui: 191375309 tig: atl: Fostering cultural humility in perinatal palliative care. An interpretative qualitative study from the United Kingdom. aug: au: Clancy, Marie Thomas, Felicity affil: Academy of Nursing, Department of Health and Care Professions, University of Exeter, Exeter, UK Wellcome Centre for Cultures and Environments of Health, University of Exeter, Exeter, UK su: Wales England Fear Nurses Palliative treatment Medical personnel Qualitative research Focus groups Stereotypes Medical care Interviewing Uncertainty Ethics Communication Religion Spirituality Psychology of parents Discrimination (Sociology) Minorities Cultural pluralism Psychosocial factors Communication barriers Hope Neonatologists Research funding Perinatal care Judgment sampling Thematic analysis Black British Research sug: subj: Fear Nurses Palliative treatment Medical personnel Qualitative research Focus groups Stereotypes Medical care Interviewing Uncertainty Ethics Communication Religion Spirituality Psychology of parents Discrimination (Sociology) Minorities Cultural pluralism Psychosocial factors Communication barriers Hope Wales England Neonatologists Research funding Perinatal care Judgment sampling Thematic analysis Black British Research keyword: bereavement support communication cultural diversity cultural humility Neonatal palliative care perinatal bereavement support communication cultural diversity cultural humility Neonatal palliative care perinatal ab: Research shows marked disparities in perinatal deaths across population groups in the UK. The aim of this study was to understand how perinatal palliative care is experienced by parents from culturally-diverse backgrounds and to understand the challenges facing the health and social care professionals working to support them. Twenty-one health and social care professionals and four parents from across England and Wales participated in interviews or focus groups. Thematic analysis revealed three core themes impacting experiences of care: 1) Obstacles and opportunities for effective communication, 2) Religious, spiritual, ethical and moral considerations, and 3) The need for continuing professional development. The Cultural Humility model was applied to the research findings to enhance applications of theory to practice and policy in perinatal care. Participants identified resource constraints, language barriers, cultural stereotyping and discrimination, and a lack of training around culturally sensitive care as core elements negatively influencing practice and exacerbating uncertainties and fears around perinatal palliative care. When considering the vast need of culturally diverse families in perinatal palliative care and the importance of religion, faith, and spirituality, it appears of paramount importance to consider cultural humility within and across intrapersonal, individual, and organisational levels and how these pertain to care. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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