Ethical Issues in Patient Partnership in Psychology and Health Research.
Patient partnership (also called patient and public involvement, citizen or community engagement, community-based participatory research, etc.) is the meaningful and active engagement of diverse individuals with personal experience of a health issue and informal caregivers, including family and frie...
| Publicado en: | Canadian Psychology / Psychologie Canadienne Vol. 67; no. 1; pp. 21 - 33 |
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| Autores principales: | , , , , , , , , |
| Formato: | Artículo |
| Publicado: |
Canadian Psychological Association
Feb2026
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=191474821&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 191474821 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 07085591 G48 jtl: Canadian Psychology / Psychologie Canadienne issn: 07085591 maglogo: N pubinfo: dt: Feb2026 vid: 67 iid: 1 pid: 98 pub: Canadian Psychological Association artinfo: ui: 191474821 10.1037/cap0000443 ppf: 21 ppct: 12 formats: tig: atl: Ethical Issues in Patient Partnership in Psychology and Health Research. aug: au: Birnie, Kathryn A. Marbil, Mica Gabrielle MacKenzie, Nicole E. Neville, Alexandra Richards, Dawn P. Jordan, Isabel Mohabir, Vina Chambers, Christine T. Hadjistavropoulos, Thomas affil: Department of Anesthesiology, Perioperative, and Pain Medicine, University of Calgary Department of Community Health Sciences, University of Calgary Department of Psychology, University of Calgary Department of Psychology and Neuroscience, Dalhousie University Centre for Pediatric Pain Research, IWK Health, Halifax, Nova Scotia, Canada Department of Anesthesiology, Perioperative, and Pain Medicine, Stanford University Five02Labs, Inc., Toronto, Ontario, Canada Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, Ontario, Canada Department of Pediatrics, Dalhousie University Department of Psychology, University of Regina su: Canada Medical care research Health services accessibility Occupational roles Human research subjects Leadership Participant-researcher relationships Psychology Patient-professional relations Patient participation Research ethics Diversity & inclusion policies Harm reduction sug: subj: Medical care research Health services accessibility Occupational roles Human research subjects Leadership Participant-researcher relationships Psychology Patient-professional relations Patient participation Research ethics Canada Diversity & inclusion policies Harm reduction keyword: éthique de la recherche considérations éthiques engagement du patient ethical considerations ethical practice partenariat avec les patients patient engagement patient partnership pratique éthique research ethics éthique de la recherche considérations éthiques engagement du patient partenariat avec les patients pratique éthique éthique de la recherche considérations éthiques engagement du patient ethical considerations ethical practice partenariat avec les patients patient engagement patient partnership pratique éthique research ethics éthique de la recherche considérations éthiques engagement du patient partenariat avec les patients pratique éthique ab: Patient partnership (also called patient and public involvement, citizen or community engagement, community-based participatory research, etc.) is the meaningful and active engagement of diverse individuals with personal experience of a health issue and informal caregivers, including family and friends, on research teams. Patient partnership has rapidly become the norm for psychological and health research in Canada. While patient partnership can significantly benefit patient partners, researchers and the research itself, it remains a relatively new practice and can be harmful when undertaken poorly. Notably, the Canadian Code of Ethics for Psychologists, fourth edition (the 'Code'), was developed largely before widespread patient partnership practice and neglects to name or define 'patient partners' as a group. While we purport that patient partnership is an ethical imperative for psychologists, the role of patient partners must be distinguished from others with whom psychologists and researchers interact (e.g. research participants, clients, employees, trainees, volunteers, clinical advisors). Our main purpose was to discuss key ethical standards from the Code pertinent to patient partnership including informed consent, privacy and confidentiality, fair treatment, general caring, competence and self-knowledge, risk, harms, benefits, objectivity, straightforwardness, openness, conflict of interest and extended responsibility. We also provide guidance regarding challenges to ethical practice in patient partnership, specifically risks posed by patient partners as an unnamed group in the Code; issues of power and vulnerability; challenges of multiple roles of patient partners; considerations of equity, diversity, inclusion and the need for an intersectional trauma-informed approach; and guidance for building an evidence base. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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