Defining the Patient Journey and Identifying Digital Health Solutions in Treatment-Resistant Schizophrenia.
Background: Schizophrenia is a heterogeneous mental health disorder associated with severe disability. Approximately 30% of patients do not respond to pharmacological treatment, a condition known as treatment-resistant schizophrenia (TRS). Emerging digital solutions could help to improve the treatme...
| Publicado en: | Actas Espanolas de Psiquiatria Vol. 53; no. 6; pp. 1208 - 1223 |
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| Autores principales: | , , , , , , , , , , |
| Formato: | Artículo |
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Maria Lopez-Ibor
2025
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=lth&AN=191763530&site=ehost-live header: @attributes: shortDbName: lth uiTerm: 191763530 longDbName: MedicLatina uiTag: AN controlInfo: bkinfo: jinfo: jid: 11399287 IVZ jtl: Actas Espanolas de Psiquiatria issn: 11399287 maglogo: N pubinfo: dt: 2025 vid: 53 iid: 6 pid: 80014 pub: Maria Lopez-Ibor artinfo: ui: 191763530 10.62641/aep.v53i6.1959 ppf: 1208 ppct: 15 formats: fmt: @attributes: type: P size: 2.3MB tig: atl: Defining the Patient Journey and Identifying Digital Health Solutions in Treatment-Resistant Schizophrenia. aug: au: Grasa, Eva Forment, Anna Alonso-Solís, Anna Ramalho, Liliana Roldán, Alexandra Pousa, Esther Aussó, Susanna Berdun, Jesus Tesoro, Ana Genova Escudero, Joan Corripio, Iluminada affil: Mental Health, Sant Pau Research Institute (IR SANT PAU), 08041 Barcelona, Spain. Psychiatry Department, Santa Creu i Sant Pau Hospital, 08025 Barcelona, Spain. Center of Biomedical Network Research on Mental Health (CIBERSAM), 28029 Madrid, Spain. NTT DATA, 08005 Barcelona, Spain. Mental Health Division, Althaia Foundation, 08241 Manresa, Spain. TIC Salut Social Foundation, Ministry of Health of Catalonia, 08009 Barcelona, Spain. Digital Health Unit, Santa Creu i Sant Pau Hospital, 08041 Barcelona, Spain. Digital Health, Evidenze, 08005 Barcelona, Spain. Mental Health and Psychiatry Department, Vic Hospital Consortium, 08500 Vic, Spain. Institute for Research and Innovation in Life and Health Sciences in Central Catalonia (IRIS-CC), 08500 Vic, Spain. su: Schizophrenia Digital health Services for caregivers Drug therapy Mental health Patients' attitudes Continuum of care Treatment effectiveness sug: subj: Schizophrenia Digital health Services for caregivers Drug therapy Mental health Patients' attitudes Continuum of care Treatment effectiveness keyword: patient experience patient journey recovery schizophrenia stakeholder participation treatment-resistant ab: Background: Schizophrenia is a heterogeneous mental health disorder associated with severe disability. Approximately 30% of patients do not respond to pharmacological treatment, a condition known as treatment-resistant schizophrenia (TRS). Emerging digital solutions could help to improve the treatment of this population. Although the importance of characterising the patient journey (PJ) is widely recognised, and previously published in schizophrenia, this has never been done in patients with TRS to identify their specific needs and select digital approaches to fill the healthcare gaps. Therefore, this study aimed to (1) characterise the PJ in patients with TRS, (2) determine the key needs of these patients, and (3) identify digital solutions that could help to address those needs. Methods: Three focus groups were constituted: (1) patients with TRS (n = 6); (2) informal caregivers (n = 4); and (3) social/healthcare professionals (n = 16). An advisory board (n = 11) was also created. We used the PJ and patient experience (PEx) methodologies, which place the user experience at the centre of the process. A five-step process was used to define the PJ, to identify patient and caregiver archetypes, to determine the needs and preferences of patients and caregivers, and to identify solutions (technological and others) to address those needs. Results: We identified the archetypes of patients with TRS and informal caregivers. Nine stages of the PJ were identified: previous symptomatology; emergency care; hospitalization; therapeutic guidelines; outpatient care; diagnosis; disorder control; exacerbations; and risk behaviours. Six key needs were identified: better care during emergencies; improved understanding of the disorder and adverse events; better communication during diagnosis; better control and monitoring of the disorder; better identification of early warning signs; and immediate professional attention. Twenty-six specific initiatives aimed at improving the PEx and care processes were defined. Conclusions: This study characterised the PJ in patients with TRS. The findings of this study reveal the key areas of the recovery process that need improvement. Importantly, we developed a set of twenty-six specific initiatives to improve clinical outcomes. The main need identified by participants was for non-pharmacological interventions. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: Y custom: Copyright of Actas Espanolas de Psiquiatria is the property of Maria Lopez-Ibor and its content may not be copied or emailed to multiple sites without the copyright holder's express written permission. Additionally, content may not be used with any artificial intelligence tools or machine learning technologies. However, users may print, download, or email articles for individual use. item: Actas Espanolas de Psiquiatria holder: Maria Lopez-Ibor dt: @attributes: year: 2025 holdings: @attributes: islocal: N |
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