Approaches to Optimize Engagement of Lower Socioeconomic Status Family Caregivers of Black Older Adults Living With Dementia in Advance Care Planning Research.
Purpose: Poor recruitment and retention of lower socioeconomic status (SES) family caregivers of Black people living with dementia (PLWD) persists and contributes to negative outcomes. Therefore, the current study was conducted to address recruitment and retention shortcomings by illustrating a nove...
| Publicado en: | Research in Gerontological Nursing Vol. 19; no. 2; pp. 56 - 65 |
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| Autores principales: | , , , , , , , , , |
| Formato: | research tables/charts Journal Article |
| Publicado: |
SLACK Incorporated
2026
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| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ccm&AN=192438737&site=ehost-live header: @attributes: shortDbName: ccm uiTerm: 192438737 longDbName: CINAHL Complete uiTag: AN controlInfo: bkinfo: dissinfo: jinfo: jid: 19404921 55P7 jtl: Research in Gerontological Nursing issn: 19404921 maglogo: N pubinfo: dt: 2026 vid: 19 iid: 2 pid: 1693 pub: SLACK Incorporated place: Thorofare, New Jersey artinfo: ui: 192438737 192438737 192438737 10.3928/19404921-20260223-02 192438737 ppf: 56 ppct: 9 formats: tig: atl: Approaches to Optimize Engagement of Lower Socioeconomic Status Family Caregivers of Black Older Adults Living With Dementia in Advance Care Planning Research. aug: au: Moss, Karen O. Wright, Kathy D. Deyhle, Abigail M. Miller, Emika Wilson-Lawson, Kimberly S. Brill, Seuli Bose Tan, Alai Rose, Karen M. Monroe, Todd B. Wills, Celia E. affil: Center on Healthy Aging, Self-Management and Complex Care, College of Nursing sug: subj: African Americans Psychosocial Factors Dementia Psychosocial Factors Low Socioeconomic Status Family Psychosocial Factors Caregivers Psychosocial Factors Research Subject Recruitment Research Subject Retention Advance Care Planning Research Subjects Psychosocial Factors Human Male Female Adult Middle Age Aged Midwestern United States Exploratory Research Multimethod Studies Snowball Sample Interviews Descriptive Statistics Social Justice Health Services Accessibility Funding Source Cultural Sensitivity Adult: 19-44 years Middle Aged: 45-64 years Aged: 65+ years Male Female ab: Purpose: Poor recruitment and retention of lower socioeconomic status (SES) family caregivers of Black people living with dementia (PLWD) persists and contributes to negative outcomes. Therefore, the current study was conducted to address recruitment and retention shortcomings by illustrating a novel community-based participatory approach to designing a culturally responsive advance care planning (ACP) intervention to engage lower SES family caregivers of Black PLWD in the ACP process. Method: A novel two-phased exemplar study was used to recruit and retain Black caregivers, maximizing flexible scheduling and interpersonal connections. Consistency, continuity, preparation, and preference along with study-specific cultural responsiveness and competency, enhanced communication, and flexibility and relevant timing engaged caregivers over time. Results: Participants and research team members reported positive study experiences. Retention rate across both phases for current caregivers was 80% and 59% for former caregivers. Conclusion: Strategic recruitment and retention amendments can ensure research quality, social justice, and health equity. pubtype: Academic Journal doctype: research tables/charts Journal Article ougenre: Article language: English refInfo: holdings: @attributes: islocal: N |
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