From bubbling to boiling over: a meta-ethnography of the process towards and during crisis from the perspectives of persons living with dementia, informal carers and healthcare professionals.
Background Crisis admissions in dementia care are increasing, often leading to negative outcomes for people with dementia, their informal caregivers and healthcare professionals. Crises arise from a complex interplay of health, behavioural, social and environmental factors. Objective This systematic...
| Publicado en: | Age & Ageing Vol. 55; no. 1; pp. 1 - 16 |
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| Autores principales: | , , , , |
| Formato: | Artículo |
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Oxford University Press / USA
Jan2026
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=192513124&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 192513124 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00020729 AGA jtl: Age & Ageing issn: 00020729 maglogo: N pubinfo: dt: Jan2026 vid: 55 iid: 1 pid: 622 pub: Oxford University Press / USA artinfo: ui: 192513124 10.1093/ageing/afaf383 ppf: 1 ppct: 15 formats: tig: atl: From bubbling to boiling over: a meta-ethnography of the process towards and during crisis from the perspectives of persons living with dementia, informal carers and healthcare professionals. aug: au: Thissen, Stella Sizoo, Eefje Smalbrugge, Martin Gerritsen, Debby L Perry, Marieke affil: University Knowledge Network for Older Adult Care Nijmegen (UKON), Department of Primary and Community Care, Radboud University Medical Center, Nijmegen, GE, NetherlandsRadboudumc Alzheimer Center, Radboudumc, Nijmegen, GE, Netherlands Ageing and Later Life, Amsterdam Public Health Research Institute, Amsterdam, North Holland, Netherlands Ageing and Later Life, Amsterdam Public Health Research Institute, Amsterdam, North Holland, NetherlandsDepartment of Medicine for Older People, Amsterdam UMC Location VUmc, Amsterdam, Noord-Holland, Netherlands su: Patient safety Medical personnel Interprofessional relations Health facilities Patients' attitudes Treatment of dementia Medical information storage & retrieval systems Patient autonomy Patients' families Research funding CINAHL database Crisis intervention (Mental health services) Systematic reviews MEDLINE Attitudes of medical personnel Medical databases Family-centered care Online information services Dementia patients Caregiver attitudes Psychology information storage & retrieval systems sug: subj: Patient safety Medical personnel Interprofessional relations Health facilities Patients' attitudes All Other Outpatient Care Centers Other Individual and Family Services Treatment of dementia Medical information storage & retrieval systems Patient autonomy Patients' families Research funding CINAHL database Crisis intervention (Mental health services) Systematic reviews MEDLINE Attitudes of medical personnel Medical databases Family-centered care Online information services Dementia patients Caregiver attitudes Psychology information storage & retrieval systems keyword: caregivers copyrightHolder:British Geriatrics Society copyrightYear:2026 crisis dementia emergency health care systems healthcare professionals https://dx.doi.org/10.1093/ageing/afaf383 informal caregivers inLanguage:en older people publisher:Oxford University Press qualitative research safety sameAs:https://pubmed.ncbi.nlm.nih.gov/41579038/ caregivers copyrightHolder:British Geriatrics Society copyrightYear:2026 crisis dementia emergency health care systems healthcare professionals https://dx.doi.org/10.1093/ageing/afaf383 informal caregivers inLanguage:en older people publisher:Oxford University Press qualitative research safety sameAs:https://pubmed.ncbi.nlm.nih.gov/41579038/ ab: Background Crisis admissions in dementia care are increasing, often leading to negative outcomes for people with dementia, their informal caregivers and healthcare professionals. Crises arise from a complex interplay of health, behavioural, social and environmental factors. Objective This systematic review of qualitative studies, using a meta-ethnographic approach, explores the process leading up to and unfolding during crises. Methods Five databases were searched for studies published between January 2000 and September 2023. Study selection involved AI-assisted screening (ASReview), followed by manual review and quality appraisal using the Joanna Briggs Institute checklist. Data synthesis was guided by the Strauss and Corbin qualitative framework. Results Nineteen studies, mainly reflecting the perspectives of informal caregivers and healthcare professionals, were included in the analysis. The core phenomenon identified is the mechanism in which professionals, persons with dementia and informal caregivers are constantly balancing between safety and autonomy, triggered by disruptions to a previously stable situation. Two contextual factors influence this process: a proactive, collaborative attitude among healthcare professionals, and a healthcare system that often acts as a push system, limiting flexibility and responsiveness. Conclusions These findings highlight the need for collaborative care approaches to prevent or manage crises more effectively, offering valuable insights for practice and policy improvements. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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