Prevalence and outcomes of recorded dementia vary by data source: a population cohort study of 133 407 older adults.
Background Dementia diagnoses are captured across multiple routine data sources, but discrepancies between these may affect both care and research. This study determined the prevalence and overlap of recorded dementia across primary care, hospital and community prescribing data in a UK regional coho...
| Publicado en: | Age & Ageing Vol. 55; no. 2; pp. 1 - 11 |
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| Autores principales: | , , , , , , , , , |
| Formato: | Artículo |
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Oxford University Press / USA
Feb2026
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| Materias: | |
| Acceso en línea: | Ver este registro en EBSCOhost |
| fields | @attributes: recordID: 1 pdfLink: plink: https://search.ebscohost.com/login.aspx?direct=true&db=ssf&AN=192513166&site=ehost-live header: @attributes: shortDbName: ssf uiTerm: 192513166 longDbName: Social Sciences Full Text (H.W. Wilson) uiTag: AN controlInfo: bkinfo: jinfo: jid: 00020729 AGA jtl: Age & Ageing issn: 00020729 maglogo: N pubinfo: dt: Feb2026 vid: 55 iid: 2 pid: 622 pub: Oxford University Press / USA artinfo: ui: 192513166 10.1093/ageing/afag038 ppf: 1 ppct: 10 formats: tig: atl: Prevalence and outcomes of recorded dementia vary by data source: a population cohort study of 133 407 older adults. aug: au: Penfold, Rose S Wilkinson, Tim Stirland, Lucy E MacRae, Clare Russ, Tom C Shenkin, Susan D Vardy, Emma Anand, Atul Guthrie, Bruce Sampson, Elizabeth L affil: Usher Institute, School of Population Health Sciences, University of Edinburgh, Edinburgh, UK Division of Psychiatry, Centre for Clinical Brain Sciences, University of Edinburgh, Edinburgh, UK Centre for Medical Informatics, Usher Institute, School of Population Health Sciences, University of Edinburgh, UK Oldham Care Organisation (part of the Northern Care Alliance NHS foundation trust), Rochdale Road, OldhamNIHR ARC Greater Manchester, The University of Manchester, Manchester, UKManchester Academic Health Sciences Centre, School of Health Sciences, Faculty of Biology, Medicine and Health, The University of Manchester Centre for Cardiovascular Science, The University of Edinburgh College of Medicine and Veterinary Medicine, Edinburgh, UK Usher Institute, School of Population Health Sciences, University of Edinburgh, Edinburgh, UKAdvanced Care Research Centre, University of Edinburgh, Edinburgh, UK Academic Centre for Healthy Ageing, Whipps Cross Hospital, Barts NHS Trust, Queen Mary University of London, LondonCentre for Psychiatry and Mental Health, Wolfson Institute of Population Health, Queen Mary University of London, London su: United Kingdom Primary health care Hospital care Retrospective studies Senile dementia Research funding Descriptive statistics Discharge planning Medical records Acquisition of data Electronic health records Data analysis software Confidence intervals Proportional hazards models sug: subj: Primary health care Hospital care Retrospective studies Senile dementia United Kingdom Research funding Descriptive statistics Discharge planning Medical records Acquisition of data Electronic health records Data analysis software Confidence intervals Proportional hazards models keyword: community copyrightHolder:British Geriatrics Society copyrightYear:2026 data source dementia dementia prevalence diagnosis electronic health record epidemiology hospital https://dx.doi.org/10.1093/ageing/afag038 inLanguage:en older adult older people primary care primary health care publisher:Oxford University Press retrospective cohort study sameAs:https://pubmed.ncbi.nlm.nih.gov/41734099/ UK community copyrightHolder:British Geriatrics Society copyrightYear:2026 data source dementia dementia prevalence diagnosis electronic health record epidemiology hospital https://dx.doi.org/10.1093/ageing/afag038 inLanguage:en older adult older people primary care primary health care publisher:Oxford University Press retrospective cohort study sameAs:https://pubmed.ncbi.nlm.nih.gov/41734099/ UK ab: Background Dementia diagnoses are captured across multiple routine data sources, but discrepancies between these may affect both care and research. This study determined the prevalence and overlap of recorded dementia across primary care, hospital and community prescribing data in a UK regional cohort, and examined whether outcomes differed by the setting in which dementia was first recorded. Methods A retrospective cohort study of adults aged ≥65 years (n = 133 407) in a large Scottish health board. Dementia diagnoses recorded from 1 April 2016 to 1 April 2020 were identified across linked primary care, hospital discharge and prescribing records. Associations between source of first recorded dementia diagnosis and subsequent mortality and emergency hospitalisation were estimated using Cox proportional hazards and Fine–Gray competing-risks models. Results At baseline (1 April 2016), 7544/133407 individuals (5.7%) had recorded dementia: 95.1% in primary care, 73.3% in hospital and 54.3% in prescribing records. Over four years, 7359 of the remaining 125,863 individuals (5.8%) had newly recorded dementia: 70.2% in primary care, 22.2% in hospital and 7.6% in prescribing records. Only 35.9% of hospital-recorded diagnoses were coded in primary care within a year or at the time of death, if earlier. People first diagnosed in hospital were older, frailer, more socioeconomically deprived and had higher mortality than those first diagnosed in primary care [<30 days: adjusted hazard ratio (aHR) 8.96, 95% CI 6.94–13.52; >365 days: aHR 1.29, 95% CI 1.19–1.41]. Conclusions Dementia is variably recorded across routine datasets, and the setting in which dementia is first recorded identifies groups with different prognoses. Improved data integration and scrutiny of hospital-based diagnostic pathways are needed to ensure diagnoses are reliably transferred and people with dementia receive timely, equitable postdiagnostic care. pubtype: Academic Journal doctype: Article src: R language: English refInfo: copyright: @attributes: flag: N holdings: @attributes: islocal: N |
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